Feavers

[Feavers]

Hi all, l have been on w * w for 5 years would like to know if mouth alcers take longer to heal for us with cll, any info would be much appreciated

[Thursday45]

Hello, I’m interested in your question. Last December I had an allergic reaction to something unknown which triggered an episode of burning mouth syndrome. This has left me with canker sores on my lips which are still evident, although not painful. I have tried all the usual remedies and had vitamin/mineral tests. Probably best to get your mouth ulcers checked out.

[Feavers in reply to Thursday45]

Hi just the one ulcer, going to the dentist next week 🤞

[Dml24689 in reply to Thursday45]

Hi ,

I have non Hodgkin’s lymphoma which shares many of the same treatments with CLL so I am part of this community.

I recently developed a mouth sore,

very painful! Which remedies worked well and how long did it last?

My GP thought about giving me a prescription mouth wash to ease pain.

I started with laryngitis and then the sore.

I am on zanubrutinib which could have caused it or just a virus?

Appreciate your feedback,

Donna

[Feavers in reply to Dml24689]

Hi Donna, I have had a alcer for 3 weeks now, have been using the usual bongelaBut have just started a recommend mouth wash that you can get in the chemist, aloclair plus

[Dml24689 in reply to Feavers]

Hi,

Thanks for the information!

Take care,

Donna

[Vindicatrix in reply to Dml24689]

There seems to be multi causes, of tis sore and annoying mouth thing, I got it when I had a recent bout of virus's and infections,

My dentist prescribed some ointment then told me that he himself uses a salt mouthwash, or small whisky rub inside the mouth.

I have used both, and to my astonishment they worked for me😀 (Honest)

[Feavers in reply to Vindicatrix]

Shopping for whisky 🤪

[Dml24689 in reply to Vindicatrix]

Hi!

I will try the salt and water again!

I tried yesterday once which surely was not enough!

Whiskey… tis the season!

Thanks,

Donnal

[Vindicatrix in reply to Dml24689]

I kept a glass of salted water at hand and would do a little gargle now and again, after a week or so the sores had gone.

They have returned, so it's back to the saltwater and whisky cotton bud dab. 😀

[Feavers]

Thanks for your reply

[Virabhadrasana]

I'm on W & W for the last year (since diagnosis) and went through a period where I was getting mouth sores regularly (on the insides of my cheek, lips or sometimes on my tongue, ouch). They seemed to take the expected time to heal about 2 weeks, sometimes a little longer then seemed like it should - but they always went away.

I was worried about all this(because CLL), my oncologist didn't think this was a symptom of my CLL. I went to my dentist, then a specialist (dentist that deals with mouth cancers) and she suggested it might be the prescription fluoride toothpaste I was using and/or sharp edged foods.

I stopped using the toothpaste every day and went to 1 x week and that helped, as well as limiting my intake of foods with sharp edges, like potato chips. I do notice now if I succumb to eating potato chips I will usually get a mouth sore.

I find it all weird, as in my 70+ years I never had this problem. Hmmmm.

[Feavers in reply to Virabhadrasana]

Hmm indeed, infections definitely seem to last longer 🤔

[Rosegardener54]

I am stage 3 and used to have extremely painful mouth ulcers all the time. My doctor told me to take B vitamins. I started using Mary Ruth's liquid morning vitamins and haven't had any mouth sores since.

[Feavers in reply to Rosegardener54]

Dentist next week, vitamin deficiency keeps coming up, l will have to get checked thanks

[Big_Dee]

Hello Feavers

I started using a teaspoon of a mixture of 2 parts baking soda and 1 part table salt in a cup of warm water. Gargle with solution. This was recommended by my first chemo infusion team and I continue this mouth wash morning and night after 6 years. It cleared any mouth sores for me in 2-3 days. I also suspect that it helps me defend against cold, covid and flu. I have not had covid or flu since I started mouth wash. Blessings.

[Dml24689 in reply to Big_Dee]

Hi!!

Thanks!!

I will add the baking soda!

I just bought some!

Thanks,

Donna

[Feavers]

Thanks, I will give that ago 🤞

[LuzyCLL]

I use salt water and a Neem Oil mouthwash, which seems to help a lot.

[Feavers in reply to LuzyCLL]

Thanks for the response, slowly getting there 🤞