RSV vaccination: hi: I just read a concerning... - CLL Support

CLL Support

22,525 members38,688 posts

RSV vaccination

mbbinbrooklyn profile image
25 Replies

hi: I just read a concerning message from Your Local Epidemiologist, a newsletter I subscribe to, about exponential growth of RSV infections in the US. My question to the CLL community is: for those of you who got this vaccination, did you have a reaction beyond a sore arm? thanks!

Written by
mbbinbrooklyn profile image
mbbinbrooklyn
To view profiles and participate in discussions please or .
Read more about...
25 Replies
Rick48 profile image
Rick48

No reaction here

Panz profile image
Panz

No reaction at all not even an awareness of the site of injection!

Panz

👍🙏🙂💕🌻🦃☔️

noeagaman profile image
noeagaman

I just had the RSV vaccine on Tuesday and and developed a high grade fever, bad headache, achy body and couldn’t eat. I just got back from the ER a few minutes ago. My temp was 103.5 last night. Hopefully I am a rare case though. I also had a bad reaction to evasheld when they were giving that.

Chris

mrsjsmith profile image
mrsjsmith in reply to noeagaman

Sorry to hear that Chris ! Poor you, what next. Hope you’re feeling better today.

Colette

noeagaman profile image
noeagaman in reply to mrsjsmith

Hi Colette. Yes, it seams like there is always something medical going on with me and many other people here. I guess it is part of being human...:) The doctor at the ER said that the RSV vaccine was so new that he wasn't sure that I was sick due to that or from a random virus. It came on a few hours after getting the vaccine which made me think that was the cause. I woke up again early this morning again with a fever and bad cough, but am finally starting to feel somewhat better now, how are you doing lately Colette?

Chris

mrsjsmith profile image
mrsjsmith in reply to noeagaman

Glad you are feeling better now.

Like you there is always something to keep us on our toes. I am having a loose tooth extracted but because of being on Alendronic acid it is being done in the hospital dental clinic and then I need a responsible adult with me for 12 hours afterwards. I am always nervous of excessive bleeding but note to self ! Stop Ibrutinib 3 days before *

Hope you are looking forward to retirement next year and your work issues have been resolved 🤞

Colette

noeagaman profile image
noeagaman in reply to mrsjsmith

I wish you well with a quick recovery for your tooth extraction Colette. I know those can be worrisome and with the meds you are on it is even more so.

I am looking forward to retirement so much. I will have to find some hobbies to fill my time I guess. The work issues have been resolved. Now the guy who did that to me won't say a word to me and I am fine with that.

Chris

mrsjsmith profile image
mrsjsmith in reply to noeagaman

Thanks Chris.

Good news re the work issues. I am sure you will find lots of hobbies to keep you occupied. Get some new recipes from cajunjeff . His gumbo sounds amazing.

Colette

Emgeegee profile image
Emgeegee

A little tired the next day but that’s it

EmilyLondon profile image
EmilyLondon

I was a bit tired. But then I was fairly tired before the vaccination. And my arm ached a bit. I think it's a good idea having it.

RosettaClapp profile image
RosettaClapp

I'm in the UK I asked my. Gp if I could/should have a RSV jab and she said she'd get back to me.. She hasn't!! So I am wondering. If I should get back to her?? Luckily I have never had many infections all. The time I've had CLL (16+YRSnow)what do you think??

lexie profile image
lexie

Not even a sore arm. Glad to have the opportunity of a vaccine for RSV.

Bill1288 profile image
Bill1288

No sore arm, but next day sneezing all day and runny nose. Second day just miserable. No fever. Third day started to feel better.

Bill

Sailaweigh profile image
Sailaweigh

Nothing but a sore arm and a swollen axilla lymph node for 4 days. The second shingles shot was the one that got me down for a day or two.

MBB

Just got my RSV yesterday afternoon. Sore arm today. Felt funky last night. Not feeling too bad this morning.

Through the 'grapevine' I heard a lot of stuff about this vaccine and was going to forego the jab until one day (just by chance) I read thru all the comments here on Health Unlocked.

Bottom Line: I'm glad I got it.

Man with a Plan

hhk50 profile image
hhk50

A little sore for a few days. No other reaction.

LynnB1947 profile image
LynnB1947

I got both the RSV & COVID vaccines on Monday of this week. The injections went okay. I ran fever the next 2 days (Tue & Wed) peaking at 100.4F. Thursday morning, I was fever-free and feeling fine. No problems, today (Friday). About 3 weeks ago, I got the pneumonia & flu vaccines and only had a sore arm.

As you'll notice, I got two vaccines together on both occasions. I did this for expediency but it does make it more difficult to determine which vaccine is causing the side-effects. In another month or so, I will begin the Shingrix series of vaccines.

I am on a drug holiday from Ibrutinib now for 8 months.

LynnB

cajunjeff profile image
cajunjeff

I had my Rsv vaccine two days ago. I had mild soreness at injection site and a mild headache yesterday. Im not even sure the headache was related to vaccine. I’m fine today.

Samm22 profile image
Samm22

I felt exhausted the day after the RSV vaccine. Only lasted one day.

mbbinbrooklyn profile image
mbbinbrooklyn

thanks everyone. It sounds like most people had no or minor reactions.

Imua profile image
Imua

Nothing significant other than having to pay $300 for it here in Alberta, Canada

Justasheet1 profile image
Justasheet1 in reply to Imua

😂 That stinks

YAMTSSFA profile image
YAMTSSFA

No reaction at all. Not even a sore arm!

SurviveOr profile image
SurviveOr

Got the latest COVID shot then, about three weeks later got the RSV shot. No problems.

neurodervish profile image
neurodervish

Got mine a few days ago. Bit of a stiff arm and slight headache/low fever for a couple days, which is nothing compared to being sick. No co-pay, but plenty of gratitude!

You may also like...

Covid, Flu and RSV vaccines

looking for advice on spacing vaccines. I received the newest Covid vaccine on Sept 20. Is it best...

? RSV vaccine

seem to remember a mention of the RSV shot not being great for CLL pts? Anyone have info or thoughts

RSV now for close to two months

I've had this bad virus which I think is RSV for two months. I thought a few times I was getting...

does it matter which RSV shot I get?

(affiliated with MDAnderson) said I should get RSV shot, but he mentioned he needed to know which...

Vaccine

if you had any blood tests after the vaccine and noticed a difference. I read AstraZeneca can lower...