2 weeks ago I received the wonderful news that I was in remission; something I never thought would happen. Bad news is 2 days later I was in hospital with A Fib thanks to Calquence. Had to stop taking the chemo obviously and am now on heart meds. Trying to get the medics to talk to the haem team was hard so I made that call myself.......called the nurse specialist and she sorted them out.
After 12 days in hospital on iv furosemide I`m now home. My legs are so painful and heavy thanks to muscles weakness they will take some getting going again. Something I`ve had since before diagnosis; just took me a while to put 2 and 2 together.
Don`t let my experience put anyone off trying calquence as we all react differently. I`ve been on it 2.5years with no problems. Just annoying that it`s started as I go into remission. Just hope I don`t start haemolysing again.
Written by
nanasu
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While you've had a worrying time, congratulations on proactively getting your atrial fibrillation treating doctors talking to your haematologist. Atrial fibrillation is manageable while taking Calquence, so please give us an update to let us know how your Afib was sorted out and you CLL treatment resumed.
I also had afib but from Ibrutinib which was immediately d/c’ed by my hematologist. Fortunately my family doctor heard the afib with her stethoscope before I had any symptoms and got me into a cardiologist the next day. Almost 4 years later my CLL is still in remission on no treatment. Wishing you the same!
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