Calquence 26th day: My headaches have stopped... - CLL Support

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Calquence 26th day

helenolton profile image
6 Replies

My headaches have stopped. I am still having pain in my leg and arm muscles. My ALC has come down to 106. Happy about that.

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helenolton profile image
helenolton
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6 Replies
camper2 profile image
camper2

So pleased it’s all going well - long may that continue!

kimiD profile image
kimiD

Good news! I hope your progress continues.

Teemed profile image
Teemed

I’m on my 4th month. Headache went away with a cup of coffe and at about 30 days no more headaches. A few odd cramps, some unusually easy bruising but all that gone at about month3. Drink plenty water!

My nodes shrank quickly, I feel really good as I guess my body enjoys the help in the fight. My bloodwork is all trending as predicted and in a good direction. We are fortunate to have this medication!

Sounds like you too are doing well with subsiding headaches, coffee helped mine.

All the best to you !!!

helenolton profile image
helenolton in reply to Teemed

HAVING A LOT OF BRUISING. i AM TIRED ALL THE TIME. I AM ON IRON PILLS, HOPE I FEEL BETTER IN A MONTH. THANK YOU FOR YOUR INFORMATION.

AussieNeil profile image
AussieNeilPartnerAdministrator in reply to helenolton

Your anaemia and the early impact of your treatment on your tumour burden will be responsible for a lot of your tiredness. You mentioned that your iron was low a while back - was that from a blood test? You really can't tell what's causing anaemia without an iron/folate/B12 study, which is a fasting blood test your general doctor can order. Having too much iron can be dangerous as in about 5% of the population, it can build up in the organs (hemochromatosis). Keep in mind that Calquence will somewhat suppress your bone marrow, while also beginning to clear out the CLL infiltration and that can also cause anaemia.

You had some good tips on how to boost your iron in response to your earlier post, but don't overlook B12 (also available from meat, but often supplemented in cereals, soy milk and other processed foods) and very importantly, folate from green leafy vegetables.

Neil

helenolton profile image
helenolton in reply to AussieNeil

My doctor put me on the iron pill. Thank you for your information.

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