I'm looking for input from our group on facing Prostate CA and also having CLL. Do we have any information on whether or not those of us with CLL are going to fare worse fighting Prostate CA than those who don't have CLL?
I'm not diagnosed yet, and have a re visit with a Urologist 11:30 this AM, but I'm getting very anxious. I sought him out a couple months ago because I was having diffuculty uriniating during the early morning hours when I'd get up a couple times. It was also more painful. He did a digital and said: "its enlarged but fortunately I don't feel lumps and bumps". He wrote an order for a PSA he wanted me to take one week before a re visit two months from that first visit. I looked online yesterday to see how the PSA came out, and damn it was 5.9. I used Google to learn that PSA is not terribly reliable, and that 0 - 4 is quote normal but might not rule out CA. Between 4 and 10 is more concerning, and might mean Prostate CA, but further tests needed. Over 10 they say is much more predictive of CA. So we'll see where this goes, and for all I know he might not even order a biopsy and just re test PSA at some interval.
So I have no clue at this point where this is going, but my mind this Morning is wondering if having CLL will reduce my chances at beating Prostate CA if in fact I am diagnosed with it.
Carl
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wizzard166
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Try not to worry yet. I had same issues before I was ever diagnosed with CLL. My PSA was 17, but like you did not have bumps and etc on prostate. It was determined I had prostatitis and antibiotics resolved the issue and brought my PSA down around 3-4. Blessings.
I spoke with my kid Brother Matt on Sunday, and he's a super brilliant Opthalmologist. He said the PSA is somewhat unreliable and asked what other tests they were doing. I told him I was seeing the Urologist today, and when I did see him he ordered an MRI Of Prostate. Matt also told me that a year or two ago he had symptoms that ended up with diagnosis of Prostatitis with a PSA of 35 and a fever and pains. I've had none of the symptoms that might indicate Prostatitis, so next step is the MRI.
Are we examining ultrasound or nuclear magnetic resonance legal?
The time trend of PSA is important. Do a test for total and free PSA. Their ratio is important. You can also have a test for acid phosphatase. What is the volume of the prostate? The volume/PSA ratio is monitored. There are other tests, to prove something.
I saw the Urologist today and he ordered an MRI of Prostate W/WO Contrast. I just called and got scheduled for next Tuesday Morning. He said the MRI will give them a full view of the entire Prostate, and enable them to see any small changes that could be significant.
My husband was diagnosed with CLL in Nov 2020 & is on w&w. In August he was diagnosed with CaP on a PSA 5.9 rising to 6.6, PSA density 0.23 only slightly enlarged prostate, (nothing on mri or ultrasound) following biopsy showing 7 out of 24 cores positive. It's at a very early stage, less aggressive, totally within the prostate. Score 3+4, group T1. This puts him at intermediate stage with good prognosis. He's currently in the process if making a decision re treatment: prostatectomy, brachytherapy, beam RT, hormone therapy all being options, all with similar outcomes re prognosis. Just the side effects & invasiveness of treatment to consider.
His consultant (head of a world leading service, training people from all over the world - oh & NHS by the way!) says he should consider the CLL as totally separate & unrelated.
I hope your outcomes are similarly hopeful. He only went to the GP as I insisted after noticing he was taking longer in the toilet in the mornings. No other symptoms! He's glad he got what he thought was minor checked out.
I have had CLL treated in 2017-8 with FCR and just after finishing, my PSA increased, (it had blipped up a bit a couple of time s prior , then came back down again) had an MRI , then biopsy, which found some cancer cells.
My treatment was hormone + radiotherapy, in 2020. All tiresome , but otherwise ok. PSA is now undetectable, hormone is finally out of my system and i'm on 6-monthly checkups.
My CLL came back at about the same time and 6 mths after radio i started cLL treatment again. I'm now year down the track on venetoclax (+ rituxamib at start), and thats going fine too, my blood back in normal ranges.
My Drs didn't feel there was affect one on the other. Although dealing with multiple diseases is emotionally and physically trying.
Hopefully yours is ok, all the very best with your results.
I was diagnosed with a Gleason 8 prostate cancer 3 years ago. As I was preparing for a RALP I was told I also had CLL. I was devastated. Two cancer diagnostics in as many months, I couldn't believe it!
I eventually had my RALP and the prostate cancer is gone. My PSA has always undetectable every 6 months. My having CLL in no way hindered that surgery.
Two years ago I was treated for the CLL. After a 15 month clinical trial with Ibrutinib+Obinituzumab+Venetoclax I am now uMRD.
So, do not despair. Both of these cancers are treatable with a good degree of success.
I hope you find that you do not have any cancer in your prostate, but if you do, stay positive. Today's medical technology has solutions for you.
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CLL/SLL possible prostate cancer secondary
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Can you afford to ignore me?
