Evusheld: Please consider joining ‘Evusheld for... - CLL Support

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Evusheld

Tinksie profile image
14 Replies

Please consider joining ‘Evusheld for the UK’ on Facebook. We are trying to join together to support each other and also have a joined up targeted response/action plan to push the Government for access to Evusheld for those the Covid vaccine is not protecting. Thanks all.

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Tinksie profile image
Tinksie
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14 Replies
Newdawn profile image
NewdawnAdministrator

Supportive but I don’t do Facebook I’m afraid.

Newdawn

annmcgowan profile image
annmcgowan

Hi I would love to support but not on Facebook.Ann

Ghounds profile image
Ghounds

Good idea but I'm another Facebook refusenik.

CLL23 profile image
CLL23

I'm in the U.S. We have stockpiled Evusheld. Still i's easier to get bootleg fentanyl.

Elaine7061 profile image
Elaine7061

Joined x

kitchengardener2 profile image
kitchengardener2

Yes, I will join. Have written to my MP (Sir Greg Knight). He has replied and asked the question in the house. He has written to me again to say he is concerned about delays for treatments for clinically vulnerable people. I really can't complain about his efforts.

KrisBren01 profile image
KrisBren01 in reply to kitchengardener2

I too have written to my MP who has written to Sajid Javid, I got a copy of the letter to Sajid Javid and then a copy of the letter from him... Is reply was basically the government are waiting for results to see if Evushield will work against Omicron, by the time they have the results more variants will be around and we will be back to square 1 waiting to see if Evushield works against the newer variants. I will join on Facebook though. X

kitchengardener2 profile image
kitchengardener2 in reply to KrisBren01

Maybe the more of us who write and kick up a fuss the better. I guess the government have to priotise what they can deal with first and when it's something which affects us personally, it is natural to feel that we are being put on the back burner. Still think we receive brilliant care from our NHS. There is no way that I could self fund my Acalabrutinib every 4 weeks so I am very grateful.

Feestvarken profile image
Feestvarken

I joined. Thanks for telling me about it.

jendur profile image
jendur

I have joined and written to my MP, waiting for a reply.

Tinksie profile image
Tinksie

Thank you guys. It’s good to hear some MP’s are trying. It’s so frustrating when trials already show a significant benefit against latest variants and other countries have already gone ahead. The hope is that joining together may have greater impact.

olyocl profile image
olyocl

I just joined

Jetliz profile image
Jetliz

I too am not on Facebook but wrote to my MP Graham Stuart and received a response within a week. He spoke in the House Of Commons about Evusheld also on behalf of another immunecompromised person and it was on the same day as the Sue Grey report so the House was packed. Boris replied in response and Blood cancer uk sent me the Twitter link to watch the actual video and Boris's reply. He more or less said they are aware of Evusheld will keep him updated with the progress as they are still working on the effectiveness but well aware of the need. Interesting to watch as Graham Stuart was very passionate in his speech and stressed next winter is too late now this summer it is needed. I can only suggest looking at the video on his Twitter you don't have to have an account to see it. I don't know how to copy the link sorry.

Julia

JIDD profile image
JIDD

I note the Aussie government bought 30,000 doses back in Feb-

tga.gov.au/media-release/tg...

WHEN OH WHEN will Sunak extract his digit and help the vulnerable in UK?

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