What is coming next ?

I was diagnosed 2 years ago, aged 49. I have been on a watch & Waitlist. My symptoms are developing. My white blood cells are increasingly rapidly. My haemoglobin and platelets are diminishing. I’m feeling fatigued. My lymph nodes are up on my neck and my armpits. What would be the next stages for me please? Thank you 🙏

[HopeME]

Hi JRP:

Please don’t fret there are lots of good treatments available. What country do you live in? Are you seen by a CLL specialist? Having this information will allow us to give you some suggestions.

Best,

Mark

[lankisterguy Volunteer]

Hi Jrp007,

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Len

[W00dfin]

Be prepared for decreasing immune response to all contagious diseases not just COVID. For example, make sure your pneumonia vaccine is up to date. And mask up of course when around anyone whose health status is unknown, especially children. They tend to be disease vectors in the best of situations. Best wishes!

[LeoPa]

This account is hidden. Was it closed by the member? Just after posting a question? Isn't that strange?

[AussieNeil Partner Administrator in reply to LeoPa]

'Hidden' does mean that Jrp007 closed their account, perhaps by accident so soon after posting, as the admins haven't had any reports or correspondence.

Jrp007, you posted in the default unlocked mode, so you can still read your post and replies without logging in. You may be able to rejoin and keep your username. If needed, you can also email HealthUnlocked Support for assistance at [e-mail]

Neil

[virdieblue]

After 4 years of watch and wait I started treatment when my HGB dropped below 10. I'm still on Ibrutinib after 5 years. Many good treatments out there. Virginia