Calquence and chills: I have been on Calquence... - CLL Support

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Calquence and chills

Agatesup profile image
3 Replies

I have been on Calquence for 6 month (previously on Imbruvica for 3.5 years). I frequently get chilled late in the afternoon. Last evening I was really chilled from hands to the toes. Does anyone else experience such chills?

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Agatesup profile image
Agatesup
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3 Replies
lankisterguy profile image
lankisterguyVolunteer

Hi Agatesup,

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Many of us report getting a broken thermostat eventually with CLL.

Here is a link to the 12 times that previous postings mentioned a broken thermostat.

healthunlocked.com/cllsuppo...

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Len

BobbyFour profile image
BobbyFour

I have a somewhat broken thermostat with CLL, although I haven’t started treatment,

LeoPa profile image
LeoPa

Are you low on energy too? Is your thyroid gland okay? Do you eat enough? My hands and feet are cold when I'm in hypocaloric mode during longer fasts. But they quickly warm up when I start exercising.

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