Any Covid survivors with CLL?

[Surfcraze]

Any Covid survivors with CLL? Would love to hear from you. Thanks!

[neurodervish]

I haven't had Covid, but someone shared this video a couple weeks ago in which Dr. Helen Parry discussed findings of research into vaccine effectiveness for CLL patients.

She mentioned that some of the trial participants showed Covid antibodies (presumably prior to getting the vaccine), but that they had not known they ever had Covid.

youtube.com/watch?v=FdjJ34e...(Not working as expected?)

Though Covid has hit the sick and elderly the hardest, it's not yet fully understood why it's harder on some and easier on others. And since CLL is a heterogeneous disease and we all come in many shapes and conditions, it may be equally challenging to untangle this particular mystery. I sure look forward to seeing more data asap.

Thanks for posting this question.

[flutterbye]

I have at present got COVID ☹️ I returned on Monday after 5 weeks in Portugal. I had a fit to fly test on the Saturday which was negative. On my day 2 test although my husband’s was negative my one was positive. I have been on Ibrutinib for nearly 7 years. My symptoms are more like a cold so hopefully won’t get any worse! ☝️Thankfully my bloods are all in normal range with IgG 9.13, IgA 3.13 , IgM 1.29Best wishes Jacqueline

[annmcgowan in reply to flutterbye]

Hi wishing you well and 🤞you don’t get severe symptoms of covid.Ann

[PaulaS Volunteer in reply to flutterbye]

Sorry to hear that, Jacqueline.

Wishing you a quick and complete recovery...

Paula

[flutterbye in reply to PaulaS]

Thank you Paula 👍

[zaax in reply to flutterbye]

That is very good to know, have you had the vaccine?

[flutterbye in reply to zaax]

Yes AZ in February and April 👍

[ChristyAnne_UK in reply to flutterbye]

Wishing you a complete and speedy recovery! Hugs…

Sorry, I have to ask… So the airline had no problem flying you home, knowing you’d had a positive Covid test? I’m stunned. Or did I misunderstand?

[flutterbye in reply to ChristyAnne_UK]

I had a test on the Saturday night which came back negative. I flew back to Scotland on Monday morning. I wore my mask all during the flight….there was only 34 passengers. I did take my mask off in the airport to have something to eat

[ChristyAnne_UK in reply to flutterbye]

Ah, You said previously that your second test was positive. That’s what confused me.

[RZ8983DV in reply to flutterbye]

Hope you get better soon. I think it might be you picked it up on the plane or in the immigration hall on arrival where from my experience there is no social distancing. I am nervously awaiting the results of my day 2 test though I don't think I've got it. I tested negative pre departure

[flutterbye in reply to RZ8983DV]

I’ve either picked it up on the Sunday or when I’ve taken my mask off to eat in the airport. I had my mask on as well as my husband all the time during the flight

[flutterbye]

Thank you Ann 👍

[Poodle2]

I had Covid in January. Feel free to read my posts. There were quite a few of us who had it at the same time (you might be able to trace their posts from their responses to my posts). The positive is that we all pulled through but it was no joke for neither of us...I do have long covid but it's improving although slowly.

[Shepherd777]

My CLL wife had covid-19 December 19th, 2020 until January 5, 2021. She was then and still is in CLL clinical remission. It hit her pretty hard, but she never needed to be hospitalized. I on the other hand spent 5 days with Covid-19 hospitalized. We are both in our 70's and thought she would handle it badly, but it was I that got double pneumonia and struggled on oxygen for 8 weeks.

[jacjar1]

As poodle2 posted many of us CLL patients had covid. I got mine late oct 2020 sick for about 3 weeks. took several more weeks to get back to myself. I have plenty of antibodies and have had both shots.....