As Milla15 wrote 6 months ago "this trial which is currently recruiting for high count Monoclonal B-cell Lymphocytosis or very early stage CLL patients (as well as a couple of other early stage blood disorders of uncertain significance). Trial will last 5 years and aims to discover markers which can help determine whose disease will progress, and whose will remain indolent, taking (hopefully) some of the uncertainty out of watch and wait. "
It's being led by Professor Anna Schuh out of the Churchill Hospital in Oxford, and involves a couple of blood tests and an optional CT scan. You must be within 3 years of being diagnosed to take part. Here is the link about the study. oncology.ox.ac.uk/about-us/...
While you can be seen in Oxford (travel expenses are offered), there are also sites in Bournemouth and Plymouth and there are plans for one in London in the summer, and in the autumn they hope to open ones in the North of the UK
I went for my study in Oxford in early May. It was an excellent experience--the whole process only taking about 2 1/2 hours. The researchers and administrator are well organised and thorough. Time was taken initially to go through the consent forms. Although not necessary for the this study, I also agreed for my bloods to go to the National Genomic Research Library. (I felt this to be a great honour, because I knew personally Prof John Sulston, the biologist who found the last link in the human genome and was passionate about not patenting it, but making data on it available to all. He has since died but would be so pleased to know how this has grown and what it is giving to medicine.)
I then had a physical examination given by Dr. Niamh Appleby--my first since Covid lockdown, followed by full blood screening. Optional is a CT scan, but I agreed to have this. Two weeks later, I was phoned with my results, offered a chance to discuss them, and then sent all my results by email (post is also possible)--both of the bloods and CT Scan.
If anyone in the UK who is eligible is interested in joining this --contact Dr. Niamh Appleby niamh.appleby@oncology.ox.ac.uk or Caroline Haddon Caroline Haddon <caroline.haddon@oncology.ox.ac.uk> (Nurse and Administrator) or OXPLORETRIAL (OXFORD UNIVERSITY HOSPITALS NHS FOUNDATION TRUST) <ouh-tr.oxplore.trial@nhs.net>