Covid vaccine for under 65 with CLL ?

[jane119]

Hello ,, I was diagnosed with CLL last August, I am on watch and wait nor requiring treatment . Does anybody know when I will get the Covid vaccine ? I do not have a shielding letter , I am 62 .

Thank you

[nanasu]

You need to register on the government web site as you should be listed as clinically extremely vulnerable and thus get any help that is available.

If you`re not listed as such then chances are you will just have to wait for your age group to get your jab.

gov.uk/coronavirus-shieldin...

Hope that link works for you.....get your details on it and you should get letter and possibly a text as well. I was on watch and wait when I registered last year and have since got all the letters etc.

I`m 68 and had my first covid jab yesterday......text from gp told me to get date booked.

Hope this helps.......and also hope that you are shielding as best you can

Take care

[jane119 in reply to nanasu]

Thank you ,, my GP is not terribly helpful and I thought because I’m not receiving treatment I might not be eligible

[Strube in reply to nanasu]

Further to nanasu's excellent reply my consultant rang me when covid ramped up again in December to say I must shield. I already was but had never chased an official letter. I emailed the GP and, while they said the consultant should have sorted it themselves, i got an official shielding letter within a week. This bumped me up from group 6 to group 4 for vaccination purposes and i got the first dose this week. My understanding from the govt website is any blood cancer should put you in group 4 automatically but it doesnt seem to necessarily follow if you dont chase it.

Hope you get sorted quickly

[jane119 in reply to Strube]

Thank you ,, the drs are having a meeting to discuss my case , I do have blood cancer so I’m at a loss why they are discussing it

[Phil4-13 in reply to jane119]

🙏 Quick and good results wished for you from your doctors meeting. Sandra

[Titian72]

Your specialist should write to your GP for you to get the vaccine, at least that is what mine said he will do. I am also on W&W since January but have not heard anything yet from my GP about when I might get the vaccine

[jane119 in reply to Titian72]

Does seem a bit hit and miss

[Tretops-UK]

Hi thereI’m 59 and have been in W&W for 4 years or so. I have read through the vaccination info for vulnerable groups online and while leukaemia and lymphoma are there, it looks as if you need to be in treatment to be a priority? Am I misunderstanding?

I’ve not heard anything re covid vaccine yet, had to chase my GP for a flu jab last year so I’m unsure if I’ve fallen through a crack! I’m in Glasgow.

Any advice would be gratefully received. Thank you.

[jane119 in reply to Tretops-UK]

I’m getting so depressed by the situation,, you get told you have CLL and then it’s like off you go and nobody will help you , I wax hold to have a pneumonia jab but that is never available, tbh I’m just giving up with it all

[jane119 in reply to Tretops-UK]

This is what I have read ,, it states including those on W&W

before, during or after treatment, including those being managed expectantly (on watch and wait)

[Tretops-UK]

Thanks for your reply Jane. I agree how frustrating it is and I have had the same experience when I asked about the pneumonia jab. Stay safe

[jane119]

Thanks Treetops at least you understand

[jane119]

Update ! I have the Covid vaccine booked for Thursday