Unmuted IGVH ..., Is that bad or good? - CLL Support

CLL Support

22,532 members38,709 posts

Unmuted IGVH ..., Is that bad or good?

Paulibiris profile image
8 Replies

(IGVH ... Unmuted) what does it mean?

Written by
Paulibiris profile image
Paulibiris
To view profiles and participate in discussions please or .
8 Replies
Newdawn profile image
NewdawnAdministrator

This is a good and less complex explanation of IGHV mutational status; (better to listen to the video)

patientpower.info/chronic-l...

Newdawn

Paulibiris profile image
Paulibiris in reply to Newdawn

Tks😊

LovelyLilyGirl profile image
LovelyLilyGirl

Dr Choi is my doctor. He’s brilliant and sweet and has my back. I’m 13q unmutated, currently close to remission on V+O. With new novel treatments, mutation status isn’t as important, as I’ve been told. I was on W&W 10 years before I needed treatment. I’m just blessed to have such an amazing doctor and support. Sally.

Paulibiris profile image
Paulibiris in reply to LovelyLilyGirl

Great ! That is good news !! I don’t understand my numbers to much .. I’m new in all this and every time I try to search for something I go to google and I get depressed, My Doctor hasn’t explain to me nothing ..

LovelyLilyGirl profile image
LovelyLilyGirl in reply to Paulibiris

Yes ignore Dr google. There is too much old inaccurate information. This support group has a lot of very knowledgeable people.

bkoffman profile image
bkoffmanCLL CURE Hero

MeansCLL is less mature and tends to move faster. Also means chemo is unlikely to work, but makes no difference with most novel therapies such as ibrutinib that is agnostic to IGHV mutation status. Stay strong, Brian CLLSociety.org

Paulibiris profile image
Paulibiris in reply to bkoffman

Thank you so much!!

Paulibiris profile image
Paulibiris

Tks

You may also like...

Treatment FCR with unmutated IGVH—clarify pls!

My husband is 13q del and unmutated IGVH. In Switzerland they propose FCR treatment and have said...

Is Imbruvica good or bad for you?

thought this was an amazing drug, and now am scared as what could be in the future?

THE GOOD THE BAD AND THE UGLY

things bring me down. Not everyone will experience what I have but i just thought i would share my...

IGVH Hypermutation test.

I went to a CLL specialist and they did IGVH testing. An email informed that I had a new test...

Cold showers - good or bad?

system is in overdrive anyway so I don't do it. Does anyone know if this makes sense or otherwise?...