CLL with Necrobiotic Xanthogranuloma condition

[Oriental-Lily]

Is anyone also struggling with the related condition Necrobiotic Xanthogranuloma (NXG) along with their CLL?

[lankisterguy Volunteer]

Hi Oriental-Lily,

I see you joined us today- welcome.

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I had to Google Necrobiotic Xanthogranuloma (NXG) so I don't have direct knowledge of that condition but I have had a Psoriasis like condition along with Petechiae since 2006, before my diagnosis with CLL in 2008. Below are some general skin discussions for your perusal.

Our archives has 500 replies that mention skin issues and CLL:

healthunlocked.com/cllsuppo...

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The NIH has several papers suggesting that CLL itself leads to skin issues, as noted here:

ncbi.nlm.nih.gov/pubmed/174...

SNIP: "Cutaneous lesions occur in up to 25% of patients with chronic lymphocytic leukemia (CLL). These can be caused by either cutaneous seeding by leukemic cells (leukemia cutis, LC) and other malignant diseases or nonmalignant disorders. Skin infiltration with B-lymphocyte CLL manifests as solitary, grouped, or generalized papules, plaques, nodules, or large tumors.....The most common secondary cutaneous changes seen in CLL are those of infectious or hemorrhagic origin. Other secondary lesions present as vasculitis, purpura, generalized pruritus, exfoliative erythroderma, and paraneoplastic pemphigus. An exaggerated reaction to an insect bite and insect bite-like reactions have been also observed".

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I suggest you have a good cancer oriented dermatologist do a full body inspection of your skin every 6 months (we get skin cancer at 5x to 8x more often than non-CLL people- and the only way to detect it early is get an expert examination) and helping treat your sores will be part of that care.

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Len