Third Time Lucky????

[jaypax]

Next Monday, I have been booked in to start my long delayed Venetoclax therapy. The 1st start was arranged for December last year but it was postponed because of a norovirus outbreak in the hospital. My next start date was March 16th......well....... say no more about that!!!!

Anyway, in the meantime, I have read many of your contributions relating Venetoclax and now feel better informed and better prepared for what is to come. So, thank you all who are already on "the journey" and have related your experiences and concerns on this site. The call from the specialist nurse yesterday brought me down to earth with a bump because I've actually been quite content for the last 3 months in our shielding bubble. So the impending treatment is quite a reality check! But hey ho, just have to get on with it.

Best wishes to all and keep posting.

Jeff P

[Lily_Pad_Master]

Go get it, Jeff. Remember to stay well-hydrated, particularly early on. How is your disease burden? If your counts are very high, they will likely keep close watch on you during titration.

[jaypax in reply to Lily_Pad_Master]

Thanks Lily_Pad. I've got numerous abdominal lymph nodes so I'll ensure I hydrate and my Doc wants me to stay in hospital for 3 nights to monitor progress as TLS is a concern. Best wishes. JP

[Smakwater]

Jaypax,

Better days ahead!

JM

[jaypax in reply to Smakwater]

Yep! Hope so!!! I'll be glad to get next week behind me. Best wishes Jeff

[pool8]

Good luck with the treatment Jeff. I started on Venetoclax on Wednesday just gone so only taken four doses of 20mg Venetoclax thus far. My blood counts are pretty good but I am not short of swollen lymph nodes including a swollen spleen. All being well I will be dealt with on an outpatient basis only.

[jaypax in reply to pool8]

Thanks for your good wishes, pool 8. So it's early days for you.....any side effects? I think my haemotologist is concerned about the masses of abdo lymph nodes so wants me to be closely monitored in the early stages. I'm hoping that, like you, I'll be dealt with as an outpatient subsequently. Cheers JP