Yesterday I meat a gentleman who has been in watch and wait for twenty years with no treatment. I guess that he is one of the lucky ones although his wife found out that she had cancer on the same day that he did and unfortunately didn’t survive. Just goes to show that you never know what life has in store for you.
Chris
My Dad had it 30 years with no treatment. 💕
So rare but nice to know it can happen.
I was on W&W 12.
Well some people have to be in the lucky 30% category who never need treatment. And some have to be in the other lucky 30% category of being on W&W for a decade or two. And some have to be in the other lucky 30% category of having CLL with the new era of medications to manage the disease.
Different kinds of luck.
Things could always be worse. As the line in the old blues song, 'Born under a bad sign' says, 'If it wasn't for bad luck, I'd have no luck at all'.
I suppose it depends on whether the individual has symptoms, or not. Many on W&W suffer from fatigue, and it's no fun simply existing rather than living...
In my case, the fatigue came on, as did swollen glands - diagnosis to treatment in 5 months. Now in complete remission for 7+ years. That's what I call luck!
Having a condition which is (or could well be) life-limiting certainly concentrates the mind on what is really important.
Change in my CLL. Faster doubling time
A long term cll patient
DOES ANYONE KNOW THE TOP CLL SPECIALISTS ON LONG ISLAND? 
Telling my employer I have CLL and need time off for treatments. 
Is It Time to Treat Your CLL? What You Need to Know
