Support: I was diagnosed in November 2018 and... - CLL Support

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kitchengardener2 profile image
6 Replies

I was diagnosed in November 2018 and could really have done with speaking to others with the condition. I am trying to start a support group. Where are you in the UK? I am in East Yorkshire.

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kitchengardener2 profile image
kitchengardener2
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6 Replies
JigFettler profile image
JigFettlerVolunteer

Hi kg2!

Welcome to our Forum and please join the rest of us on our CLL journeys.

I would urge you to consider locking your post - given you are identifying where abouts you are.

At the bottom of your post you will see:

Who can see my post? Learn more

Anyone

Only community members

This is how you lock a post so ONLY members on the Forum can see it and not Google searches at large.

I am also interested in local support groups. They are popping up here and there, buddy schemes too.

I have a feeling there is a support group in your neck of the woods, try searching the posts for support groups and Yorkshire...

Best wishes

Jig

kitchengardener2 profile image
kitchengardener2 in reply to JigFettler

Thank you will do. Actually thought I was just replying to a private message, obviously not. Will check in future.

oilraguk profile image
oilraguk in reply to kitchengardener2

Hello, suggest you contact CLL Support and ask to be put in touch with the Trustee lead for support groups who will help you. If you don’t already have their contact details check out their website

kitchengardener2 profile image
kitchengardener2 in reply to oilraguk

Thanks, I am already in touch.

kitchengardener2 profile image
kitchengardener2

Thank you will remember to lock posts. But I can't see where to lock posts??

Newdawn profile image
NewdawnAdministrator in reply to kitchengardener2

To lock it retrospectively, you’ll see ‘more’ at the bottom of your post. Click on it and edit will come up as part of the menu. CLick that and you’ll see the option to change a tick from ‘everyone’ to ‘only members of this community’. Change the tick to the second one and repost.

A little padlock will appear on the post.

The same when you make a post. Just remember to change the little tick over. It’s only your own main post you can lock. When replying to others, the status of the reply i.e. locked or unlocked depends on whether the author has locked the post you are responding to.

Hope that makes sense.

Newdawn

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