My baby: They thought my 27 year old daughter... - CLL Support

CLL Support

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My baby

5 years ago•4 Replies

They thought my 27 year old daughter had Lupus. But now, they want her to get to a blood specialist and have her on Oncology medicaid. She is so tiny. A slip of a girl.

I am terrified. I found you here, thank you for listening.

Written by

JustMeeAgain

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4 Replies

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AussieNeilAdministrator5 years ago

Hi JustMeeAgain,

I'm guessing that your daughter might have an auto-immune blood condition from what you have shared? If so, you may find the Leukaemia Care community more helpful healthunlocked.com/leukaemi... as it provides more general support. This community supports those with Chronic Lymphocytic Leukaemia (CLL) and their carers. CLL becomes more common with age and very few people your daughter's age are likely to have it.

Treatments are improving all the time, so if you do any on-line research, pay most attention to articles less than five years old.

Neil

Panz5 years ago

Good morning! Neil has made a very good point, however, I just want to welcome you and I am so happy you are reaching out and seeking support. I can’t imagine how you are feeling right now....having a child running into a serious health issue but you must have faith! You keep searching and supporting her....that is huge! In the meantime I shall be praying that the two of you find some answers. Please just remember the not knowing is the very worst part. When you know what you are dealing with that helps a lot. Hang in there! Panz 🙏💕☘️😍

JustMeeAgain in reply to Panz5 years ago

Thank you so much. I suppose I had a moment of weakness this morning, just heard last night. I will take your advice, and your prayers are a Blessing. xxoo

AussieNeilAdministrator in reply to JustMeeAgain5 years ago

I'm turning off replies to your post, just so that you don't get misleading replies from members assuming that your daughter has CLL. In the highly unlikely event that your daughter is diagnosed with CLL, we'll be here for you and your daughter. Just post again and let us know. You need to look after yourself and find support from others so you can be there for your daughter.

Neil

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