Pathology materials - CLL: I booked an... - CLL Support

CLL Support

22,532 members38,709 posts

Pathology materials - CLL

writepa profile image
3 Replies

I booked an appointment at MD Andersen for my husband and they ask my husband to bring the pathology materials (slides and parafin blocks). But the hospital does not give them to us.

That means we have to take all the tests again at Md Anderson? seem likely.

Written by
writepa profile image
writepa
To view profiles and participate in discussions please or .
3 Replies
Jm954 profile image
Jm954Administrator

Hi there,

the hospital may have a policy that prevents them from handing over clinical material to the patient as there are strict regulations regarding packaging and transport. Please explain the situation to MDA and ask them to ask for the blocks and slides.

If they were done a few months ago it may be better to have them repeated anyway but MDA will know best.

Hope you get this sorted

Jackie

lankisterguy profile image
lankisterguyVolunteer

You may want to instruct your current hospital to send a slice of the block to MDAnderson, after you remind them that under HIPPA rules your health records and samples are your property, not theirs.

You will likely need to sign a number of documents and get the name and specific address for the MDA pathologist

since your from an asian country per your first post-rules covering usa hospitals and doctors would not appy. However have you actually requested these records from the hospitals/doctors. In usa you also have to go thru requesting procedures.

You may also like...

My husband has Cll..

remission liked we hope so now they want him to try Imbruvia .. Has any been taking this and give...

cll and Fenbendazole

CLL and i have read so much on Fenbendazole joe Tippens protocole having used it on my husband im...

New SLL/CLL diagnosis

the implication for this might be? I have not had FISH testing and do not know my IGHV status, my...

Kenya with cll watch and wait

were going to Zanzibar but have had to cancel because my husband can't have the yellow fever...

MD Anderson doctors for CLL

Hi all, I try to make an appointment with Dr Wierda at MD Anderson but he’s not available at least...