Sorry a few days late. I had my 3rd infusion on Friday. Got to Rutgers around 7:00 A.M.
Labs, first the wait for results. No issues so let’s get going. Started infusion premeds 💉around 10:00 am. Started 🧪infusion around 11:00 am. Striated step up again. Took it much faster this time was done by 3:30PM.
So it looks like outpatient infusions from now on. Having a little problem with a tooth this week getting that looked at on Friday. Mouth is sore
Do not want an infection. 😳🦠
Next treatment is on the 14th of June.
So far i feel good a bit more energy than in the last few weeks. I am sure that was from the hospital stays.
Not much more to report at the moment.
Everyone have a great week.
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Coolerjoe
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Following your journey closely. My husband started a trial today for Ibrutinib/Obenituzimab. Reacted first thing to the Obenituzimab with convulsions. More benedryl and some demerol. Hoping for the best and minimal reactions. Glad you are doing better and seem to be through the reactions.
Best of luck. Our Arm of the trial does not include Venetoclax. We were hoping for that but we will see where this journey takes us. I hope your remission is soon!
Thanks for sharing. We weren’t really expecting that so it took us off guard. More Benedryl and some Demerol and he was able to finish. Hoping for a better Day 2 infusion.
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