Question : Is your wbc going up 3.2 in 1 1/... - CLL Support

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Nanatoo4 profile image
7 Replies

Is your wbc going up 3.2 in 1 1/2 months good numbers? I figured I would ask here and get a quicker response

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Nanatoo4 profile image
Nanatoo4
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Cllcanada profile image
CllcanadaTop Poster CURE Hero

White blood cell count [WBC] fluctuate a lot... in response to all kinds of pathogens.

Newdawn profile image
NewdawnAdministrator

Like Chris says, it’s not massively significant and could even be subject to lab variations. I’ve been known to jump 40 points in that time and back again due to sub-clinical infection (one I wasn’t aware of). It’s the trends over time that matter.

Newdawn

lankisterguy profile image
lankisterguyVolunteer

Hi Nanatoo4,

Looking back over your previous posts I see that your Husband is 59 years old, diagnosed about 18 days ago with a WBC of 15.9, you live in USA Georgia and will see a hematologist in January. Others have suggested that you attend a CLL Society Support Group

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Atlanta Metro CLL Support Group

cllsociety.org/venue/emory-...

November 11 @ 3:00 pm - 4:30 pm

Emory St. Joseph Hospital – Atlanta Metro CLL Support Group,

5665 Peachtree-Dunwoody Road Atlanta, GA 30342

The Atlanta Metro CLL Support Group, sponsored by the CLL Society will be meeting on the 2nd Sunday of each month at 3 PM. Please join us. RSVP to Andy Neiner and let him know how many will be attending.

Phone: 770-522-7528 or email aneiner@neinerassociates.com

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Leukemia and Lymphoma Society – Tucker – Family Support Group

November 6 @ 7:00 pm - 9:00 pm

cllsociety.org/event/leukem...

Tucker First United Methodist Church’s Wesley Center – LLS – Tucker – Family Support Group, 5095 LaVista Road

Tucker, GA 30084

First Tuesday of every month at 7pm.

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Your posting today asks if an increase of WBC of 3.2 in 6 weeks is good. And giving medical advice is not allowed here, so we cannot say good or bad, you should get a hematologist's opinion about that.

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But that amount of change- 20% in WBC could be caused by many factors other than CLL, like a minor infection raising his Neutrophils.

The better metric to track is a value called ALC (Absolute Lymphocyte Count) or Lymph# and the CLL expert doctors don't pay attention to the changes until the ALC is above 30.

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I will send you a PM/Chat with links to information you can read while waiting for your husband's upcoming appointment.

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Len

Nanatoo4 profile image
Nanatoo4 in reply to lankisterguy

Thank you so much you are so sweet!!

Nanatoo4 profile image
Nanatoo4

Thank you. We still do most of our health care in California and we came and the doctor said she just wanted to take some blood. We see oncologist in February! Anytime we come to California we let our doctor know and she ordered what’s needed. Thank y’all very much

lankisterguy profile image
lankisterguyVolunteer

Since you seem to have both Georgia and California choices, you may want to consider finding a top CLL specialist doctor in either state, and get an expert opinion.

We often recommend that since the Mayo clinic has proven clinical data that patients live years longer under the guidance of a CLL expert.

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Here is a list of them: cllsociety.org/toolbox/cll-...

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We have several members that know the California specialists well, and perhaps some that see the Georgia specialists at Emory. - I would expect that the Atlanta support group meeting will have numerous of their patients attending.

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Len

MsLockYourPosts profile image
MsLockYourPostsPassed Volunteer

Southern California? I'm in Southern California and would be happy to connect with you about doctors and support groups here. You might want to restrict your original post - the one at the top of this thread - to community only, since it has a lot of information about you. Go to the v next to more, click on edit, then go to the bottom to change the setting.

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