Diagnosed at 30: Yes I was diagnosed at 30, I... - CLL Support

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Diagnosed at 30

Reg722 profile image
5 Replies

Yes

I was diagnosed at 30,

I went six years before I need a treatment .

I’ve developed thrombocytopenia which is self-destruction of the platelets . I did six months of treatment and was fine for five years . I did relapse again and started self destructing my red blood cells as well . I did six months of treatment and then a regimen for two years . I stayed in remission for another three years . I have again relapsed

I became a hemolytic anemic an d required six blood transfusions, eight weeks of chemotherapy and I am on a maintenance program for two years with chemo every three months .

Pete has been almost 19 years since I was diagnosed . I feel good and take each day as it comes .

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Reg722 profile image
Reg722
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5 Replies
MsLockYourPosts profile image
MsLockYourPostsPassed Volunteer

I'm sorry you are facing all of these challenges along the way, but it sounds like your doctors are on top of things. Keep on keeping on ! As Brian Koffman would say.

Lola69 profile image
Lola69

Hi Reg!! inspiring read. Thx for sharing and keep doing what u are doing. Seems to me that u have a wonderful spirit with the will to live! all the best to u. May u live to blow 100 candles.

Jm954 profile image
Jm954Administrator

A great and inspirational story of overcoming some of the complications of CLL overmany many years! Thanks for posting.

annmcgowan profile image
annmcgowan

Well done. A very uplifting story. Love the positive attitude.

Ann

Peggy4 profile image
Peggy4

You seem to remain positive despite many challenges. Well done you.

Peggy 😀

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