Our doctors are used to hearing we are tired, fatigued or exhausted which is often dismissed - perhaps using a different word, from Wiltshire, would get their attention !!
Listed in "A Glossary of Words Used in the County of Wiltshire," by Dartnell and Goddard (1893), it means "overpowered by fatigue."
Good illustrative word Myrddin. Similar to the ‘zonked’ I tend to use 😴
We use the expression ‘cream crackered’ in my part of the world too because of what it rhymes with 😊
Newdawn
My doctors aren't "tired" of hearing about fatigue or tiredness. In fact it's the first thing they ask me.
The term is cute but my docs won't know what it means without explaining.
💕
Lol that’s funny. I’ll have to use this new word at my appointment with my new doctor today 🤣
I like it. I am always making up words for my GP. When he asks me how I am doing, I will say “ ok except for my CLL and my OPD’s (old people diseases)
Good word! I'm going to start using it - at least on facebook. 
I like it. Before I started treatment, my fatigue was so debilitating I couldn't find words to describe it. I called it "narcolepsy-like" - it would strike without warning and I'd collapse into the nearest chair and slip into a coma for about 40 minutes. I once had to be carried off an airplane like the guy in the picture because I couldn't physically stand up and walk by myself. I get tired of doctors dismissing this fatigue or saying we can manage it with diet and exercise. I eat healthily, walk 2-3 miles daily and workout with a trainer at a gym 3x/week and I was still getting totally "quanked"! The good news is since starting treatment (6 months on ibrutinib and obinutuzumab), that kind of fatigue stopped immediately. Now I just have general fatigue which is very different and manageable.
Just love it.
And a superb idea. As a whitecoat in past life I assure you that would work!
Than you
Jig.
I love this myrddin, I've now got to find out what sprunting and frooncing mean ! , God bless, Terry
Grandiloquent Word of the Day
Froonce
(FROON-ts)
Verb:
-To go about in an active, bustling manner.
-To move in an energetic or noisy fashion.
The only etymology I can find is that it’s from Yorkshire.
Used in a sentence:
“After sprunting all weekend, then frooncing to get my chores done, I’m well quanked.”
or
"Everyone in the office begins to froonce as soon as the boss walks in!"
Sprunt
(sprUNT)
Verb:
-To chase girls (or boys) around among the haystacks after dark.
While there are other definitions for the word “sprunt”, this particular definition comes specifically from Roxburgh Scotland. It is possibly of Scandinavian origin; akin to Swedish dialect “sprunta" to jump, “sprinta" to jump, hop.
The more current definitions are as follows:
Verb:
-To spring up; to germinate; to spring forward or outward.
Noun:
-A steep ascent in a road.
Adjective:
-Active; lively; vigorous.
See also:
Spruntly
Adverb:
-In a sprunt manner; smartly; vigorously; youthfully.
good one
Hi, My consultant is listening now. They are waiting for my red cells and platelets to drop but I felt if I insisted he would start treatment. I told him my husband got all the meals and I was incapable of functioning normally. He said if he treated when main issue
was fatigue he was worried I might feel worse when taking Ibrutinib. I
thought
Ibrutinib was supposed to be a wonder drug but reading peoples side effects has made me nervous. Anne
My husband is on Ibrutinib (6 months) and despite some minor side effect issues, his fatigue has gotten so much better. On a scale from 1-10 (10 being quanked!!) he is currently a 2! He used to have to nap several times a day....now down to once a day. We were nervous too....but he is religious about drinking lots of water and never missing a dose.
Thankyou for your kind words. I feel I have been lucky when I read how many problems some people have. I began to think the words ' Be careful what you wish for' might apply to me regarding Ibrutinib. When you have had fcr before there are more side effects but it is done in 6 mths. When I start I will remember to drink loads. For my husbands sake I would like the energy to plan days out or holidays. Anne
I hope for the best for you as well, Anne......my husband has been planning our vacations as well!
My GP dismissed my complaints for several years and then my hematologist. When I finally went to a CLL specialist, she dug down deeper with questioning and told me that the kind of fatique I was discribing was more than what I should be experiencing for my level of progression. Then after a series of tests it was fould that I had extreemly low testostrone. And as it turns out there are several other things it could have been as well. Needless to say after years of feeling like that and blaming it on CLL, I now feel like I'm not sick at all. Up til the new discovery, I was quanked!. I still have CLL, but I'm more like a normal person now. I guess there are two lessons here. Don't blame everything on CLL and definitely see a CLL specialist verses a GP or a Hematologist.
Absolutely only down to CLL if other causes have been ruled out. Just need doctors to try and find an explanation - not just say you bloods are ok so you should not be tired- no help at all.
In Australia, we say 'knackered' for exhausted.
Potential cure for CLL
Christmas is upon us!!
Red spots all over my body.
Alcohol with Ibrutinib
