No longer a treatment virgin: downed my first... - CLL Support

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No longer a treatment virgin

johnl profile image
6 Replies

downed my first three 140 ibrutinib capsules Wednesday evening after 16 and a half years of wait and watch. The length of my treatment virginity rivaled the length of my actual virginity ( it depends on your definition of sex Remember Bill and Monica). Anyway I'm in the Ibrutinib/Venetoclax trial at M D Anderson now. I'm grateful for my long W&W it gave me a chance to finish working and for better drugs to come down the pipeline.

john

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johnl
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6 Replies
gardening-girl profile image
gardening-girl

John, wishing you the best as you embark on this new phase of your life. May it be long and trouble-free! Keep us posted on your experiences with the MDA Ibrutinib/Venetoclax trial.

gardening-girl

Justasheet1 profile image
Justasheet1

God has been good to you. Wishing you all the best. You couldn’t be in better hands.

Jeff

Jm954 profile image
Jm954Administrator

If you have to have CLL that's the way to do it! Long W&W then possible the best treatment possible............ good luck with your treatment.

Jackie

Ellieoak profile image
Ellieoak

Wishing you the best! You are in good hands. Take care, Anna

Lily_Pad_Master profile image
Lily_Pad_Master

Glad we're connected here, John. We can compare notes, cheer one another on, and celebrate our successes. Quite an accomplishment, those 16.5 years as a virgin! Wow! I made it only five (I'm talking about W & W here). I'm IVGH unmutated, which is probably why I'm starting treatment now. Your long W & W will probably be replicated after your trial! Awesome!

casanova profile image
casanova

Wishing you well in your treatment. I have found Venetaclax to be the best yet for me. Keep us posted

Maureen (UK)

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