Good morning all,
I have CLL/SLL and I’m wondering if leg weakness is normal? There are times, and it is becoming more frequent, that my legs just give out on me. For months now I assumed it was a pinched sciatic nerve, but the pain isn’t constant. Also, my balance is completely shot. Would appreciate comments and recommendations. Thanks.
Do you have any peripheral neuopathy... ? I went through a period like that for about a year, with muscle weakness, and trouble knowing the position of my right leg.. coupled with a srrange form of vertigo...not true vertigo, but a sense of always about to fall...
After a year it cleared....
~chris
Yes, I have neuropathy in my legs. Will talk to MD on Thurs re this issue too. Thanks.
Have had leg weakness off balance and on going nausea for minths and Chris encouraging yours went,,,,, I di have macular degeneration in bith eyes which tends to make me feel iff balance I guess but was it mornings you felt weakness in leg or legs!? I find getting up my right leg seems to drag and niwadays trying to get control of blood pressure is seeming harder, have pacemake and af do it dhoukd be much lower than is,but,,,
Am starting i g infusions next week and hope they dont make thungs worse!?
Finding this website is so helpful, have been so lucky as other than swollen lymphs and exhaustion have avoided treatment for twenty years! Nownearly eighty five! Green tea tablets used to take daily to shrink nodes,,seemed to work! Wat h for to ity mind you if u have liver problms,,but dd me proud an avoided chemo,
Have enquired about a fish testbut my heamo said not necessary as still w and w! So thankful if somewhat fullof aches and pains etc,,but look at my ancie nt years! Just had two fairly majorbowel ops whoch they say Im doing well, so guess i must be!
Glad your legs cleared, keep winning
Best eishes.
Gralnick
I have had similar experience off and on. My legs are always weaker as the day progresses and stairs are hard by evening. My knees occasionally buckle out of now-where and it's scary. Fortunately not both at the same time yet. But I also have sciatica that stays in check only with exercise, and osteoporosis.
My doctor doesn't think these issues are directly CLL related but it does seem to be connected to fatigue. The docs tends towards thinking these things are age related. I'm not sure how old you are but I feel like I've aged 15 years in the last 2. I also think CLL effects my overall health and that plays a big part.
I wish you the best in finding the cause and some relief soon.
Unfortunately you have submitted two posts on this topic and the duplicate wasn't picked up. (This happens sometimes and can be caused by a site bug.) There are some helpful replies on the second post here: healthunlocked.com/cllsuppo...
I’m 78 and was diagnosed last year. Have been watching, but no treatment yet.
Hi there. I have leg weaknes and in my case we are linking to fatigue from the CLL. It feels a bit like what happens when someone is running a Marathon sometimes and they just collapse. I have never actually fallen but have come close many times. I use two Nordic walking poles to help me walk further. And if I reduce my walking rather than pushing it too much it tends to happen much less often.
Of course you should not assume that what I’m experiencing is the same thing as you and talking to your doctor is a smart move.
I have noticed weakness in my legs but it’s not clear if it’s related to CLL, diagnosed last year. My wife and I went into SF last weekend to visit out of town relatives and figured we walked at least five miles. In my case I think any weakness is related to age and not getting off my butt and getting more exercise!
Yes, normal. I have no idea what your medical situation as far as your age et., but I force myself to the gym and do some leg strengthening exercises to help counteract those symptoms (I'm 67). Also worked with a physical therapist, which was very beneficial. You do need to get some expert instruction on what and how to perform those exercises. Physical therapist is best or a really good personal trainer.
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