Ibrutinib treatment: I have been fighting CLL... - CLL Support

CLL Support

22,532 members38,709 posts

Ibrutinib treatment

Mike-72 profile image
3 Replies

I have been fighting CLL for 10 years. I was put on Ibrutinib lat month. Except for minor rash and some joint pain, I have not had other problemes. My appetite has somewhat improved. My WBC has, however, increased (from 283 to 310) which I understand is typical at the beginning of treatment. My platelet count which was around 100 before treatment has increased to 140 (lower normal level) which is a puzzle for me.

Written by
Mike-72 profile image
Mike-72
To view profiles and participate in discussions please or .
Read more about...
3 Replies
PlanetaryKim profile image
PlanetaryKim

My platelet count also increased back into the normal range in the first 30 days of Ibrutinib, Mike. I think it shows that the Ibrutinib is working and has already cleared enough of your marrow for you to make normal # of platelets again. Good luck!

kim

Jm954 profile image
Jm954Administrator

Hi, that's all a completely normal response to Ibrutinib and it's clearly doing it's job of clearing out your nodes and marrow so that the normal blood cells can grow.

Great news that the side effects have been minimal too.

zaax profile image
zaax

Don't forget to keep drinking liquids as there is quite a lot of CLL to get rid of

You may also like...

About to start treatment on Ibrutinib.

I was diagnosed with CLL in May 2017 (88 years old now) and have been on Watch and Wait since then....

2 Issues: Ibrutinib side effects + Ibrutinib plus Venetoclax Treatment

My mom started the treatment with ibrutinib 10 days ago, the full dosis 420mg per

Coming off Ibrutinib while awaiting next treatment.

My partner has been told by his Oncologist to stop taking Ibrutinib, as it is no longer effective....

Infection, hospitalisation and future treatment with Ibrutinib or trial drug.

clinic to discus treatment for CLL and the consultant stated i am now eligble for Ibrutinib. I am...

IBRUTINIB shorter time treatment - e.g. for one month

am going to have a hard time and may ask for a lower dosage.