Acalabrutinib trial in Oxford?: I am in a... - CLL Support

CLL Support

22,532 members38,709 posts

Acalabrutinib trial in Oxford?

clemens profile image
2 Replies

I am in a clinical trial in Salt Lake City Utah, receiving 200mg/day ACP-196 since may 2015 with good results and almost no side effects. As I am moving to Germany I would like to continue this trial somewhere in the EU, preferably in Oxford, because I have a son who lives there. Last year a representative of Acerta Pharma told me that there were trials going on in London, OX and Milano in the EU. The Acerta websitew is down and there is no one at Acerta or Astra to contact.

Can someone help me with contact information?

Thank you Clemens

Written by
clemens profile image
clemens
To view profiles and participate in discussions please or .
Read more about...
2 Replies
Cllcanada profile image
CllcanadaTop Poster CURE Hero

Here is the NHS clinical trial database link, there does not appear to be an acalabrutinib (ACP-196) CLL clinical trial in the UK at the moment... you can try other search criteria

ukctg.nihr.ac.uk/trials?que...

There is one trial ACP-196 for Multiple Myeloma

ukctg.nihr.ac.uk/trials/tri...

You should contact Acerta or AstraZeneca, who owns the drug, for more information...

There is also the matter of a foreign national entering a clinical trial, you need to look into the requirements... once you find a trial... it may matter it may not... but it is something you need to know...

Even moving to German, what are their requirements for medical coverage and treatment? Perhaps there is bridging insurance you can get from your U.S. insurer... these are things you need to look into. If you are employed in Germany, does coverage start immediately or is there a waiting period...?

~chris

TheFrog profile image
TheFrog

Clemens I am a patient of Dr Anna Schu in Oxford and she is a CLL/SLL expert and runs a lot of trials, I think if you contact her you may find she can help you.

You may also like...

ACP-196 (BTK inhibitor acalabrutinib) Trial

my husband is now at the 12 month point on this trial. Bloods etc are all OK. He had a bone...

Acalabrutinib Trial for COVID-19

ACP-196 (Acalabrutinib) TRIAL - 31st monthly cycle achieved with full remission

nothing really to report. Husband is still on the ACP-196 trial and has just come up to his 31st...

Successful start of second arm of Acalabrutinib, Obinutuzumqb, Venetoclax Trial

Globulin counts up a little. Neck node down to almost nothing in 24 hours! Scream-singing to...

Acalabrutinib Ventoclax

the same on my new path on this second part of my trial I will still be taking Acalabrutinib daily