I suffer with chronic fatigue but it tends to ... - CLL Support

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I suffer with chronic fatigue but it tends to be worse in the morning and does not tend to subside for several hours. Is this common with ha

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AussieNeil profile image
AussieNeilAdministrator

Hi Graham,

You'll need to edit your question to fit within the limit. I presume you meant to write "... Is this common with having CLL?"

Have you looked at our recent polls? This one on fatigue shows that fatigue in the morning is relatively common, but most of us experience it in the afternoons.

Fatigue-is-common-symptom-with-cll-that-is-poorly-recognised-by-doctors...

healthunlocked.com/cllsuppo...

You'll find plenty of tips on how we manage and even improve our energy levels in the replies to that poll and elsewhere. Hope that helps you before you commence your travels so that you can actually enjoy them!

Neil

bkoffman profile image
bkoffmanCLL CURE Hero

Lots of causes for morning fatigue, including CLL, but I would also look at the quality of your sleep.

lankisterguy profile image
lankisterguyVolunteer

Repeating my reply to another post yesterday. The regular readers here will be familiar with this message:

CLL affects the immune system, and many childhood diseases can be reactivated. So while these are not directly caused by CLL, CLL does open the door to other infections viral and bacterial. Some of them cause extreme fatigue, some cause high temperatures. The doctors need to test for many possible causes not normally found in adults. CMV, EBV and HHV-6 can be reactivated in immune compromised patients, HHV-6 (Roseola or Sixth's disease) debilitated me in 2012 with severe fatigue and elevated my ALC. Whooping cough got me in 2010.

fish61 profile image
fish61

I am 75 and I have been fatigued in the afternoon , about i hour after lunch, so I sleep like a rock for 1+ hours ( have sleep apnea but it is controlled by a plastic mouth devise my dentist made for me ).

I have decided that I have 3 choices 1) move to Mexico for a daily Siesta 2) move to Italy where everyone take a nap or 3) put up with it here..

Since Irbutinib works so well any of the 3 choices are acceptable. fish61