Hi everyone! Is pins and needles something that happens to CLL sufferers. My disease has advanced as you know, lots of swollen glands.

[maureenmckeown]

[MsLockYourPosts Passed Volunteer]

Is the pins and needles sensation in specific locations, like feet, legs, fingers, or all over?

I get pins and needles like sensations in my legs and feet which I think is a combination of neuropathy and the effect of some back issues.

[maureenmckeown]

Hi pkenn

I am getting it in my arms,hands,legs and feet. It's persistent and annoying rather than painful.

[Cllcanada Top Poster CURE Hero]

Might be nodes pressing on nerves or peripheral neuropathy, you should bring it to the attention of your CLL doctor...

~chris

[ygtgo]

Hi Maureen

Like pkenn I get pins and needles like sensations in my legs and feet ........ When I am feeling poorly I feel it albeit lightly, in my arms and face. It is being treated as Neuropathy, and I'm on Lyrica tablets 100mg x 3 daily.

The sensation is annoying but not painful.

The ' tingling ' sensation I now feel in mainly my legs and feet didn't start until about 2007, my diagnosis of CLL was in 2006 I am still on Watch & Wait.

[maureenmckeown]

Thank you all for your help and advice. I'll have a chat with my consultant,

p.s. I am starting my treatment on Tuesday...... Bendamustine + Rituximab on 28 day cycle.

Maureen

[fish61]

Pins and needles can sometimes be relieved by a baby aspirin. fish61

[cllgirl]

It looks as if several of us share this issue. I have had the pins and needles in my hands and feet since I was diagnosed in 2009. My dr. at MD Anderson doesn't seem to think it is a problem to be worried about. So, I don't worry about it, but it is nice to hear that I am not alone in experiencing these symptoms. I have been on Ibrutinib clinical trial for six months, but that doesn't seem to affect the pins and needles sensation one way or the other.

[gotCLL]

I have vitamin B12 deficiency, as do many (probably most) of us who are older, no matter how much B12-rich food we eat. The level of a 'factor' which allows us to absorb B12 from food drops as we age. Eventually we do not have enough.

If I give myself a 1ml injection of cyanocobalamin every 10-14 days, I can keep the pins-and-needles pretty much under control; if I don't, they become more than just annoying.

(Five years ago it was once every three weeks; ten years ago it was once a month. I'm nearly 78 years old.)

Have your B12 level checked every 3-6 months and get a prescription for injections if it's low.