I cannot fully update my profile because watch... - CLL Support

CLL Support

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I cannot fully update my profile because watch & wait isn't an option on the treatment list. What have others put in for this?

pitbull profile image
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pitbull
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AussieNeil profile image
AussieNeilAdministrator

Good point Pitbull; the closest I could find were a couple of 'monitoring' options which weren't appropriate. So you've prompted me to submit the following email to HU 'Help'.

"Watch and Wait" is a common 'treatment' for chronic conditions in which the disease is monitored by a specialist to determine whether intervention is required. Many of our community are on "Watch and Wait" and hence would like to include this in their profile.

Accordingly would you please add this to the treatment options?

Thank you,

Neil

PaulaS profile image
PaulaSVolunteer

I had the same problem with the symptoms list. I tried to put "tiredness", or "fatigue", or"exhaustion", but it only came up with more complicated, specific sorts of tiredness (eg tired eyes, nervous exhaustion, battle fatigue). The nearest it had was "muscle fatigue", but even that isn't quite what I wanted to say.

AussieNeil profile image
AussieNeilAdministrator

Here's HealthUnlocked's response:

"Thank you for sending us this feedback.

We actually have plans to improve the whole section of the profile that includes Conditions/Symptoms/Treatments over the next few weeks so I’ll pass this information along to my colleagues as they work out which improvements to roll out.

Best regards,

Amedeo d'Amore

Marketing Executive

HealthUnlocked"

Be interesting to see what eventuates...