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CLL Support

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Got Evusheld After 19 Phone Calls!

This is how it happened. If you want it, don’t give up! Started by calling the C...

To Test or Not to Test: Answering Your Questions About Testing for COVID-19- simple guidelines from Weill Cornell NY Presbyterian Hospital

To Test or Not to Test: Answering Your Questions About Testing for COVID-19...

**NOTE CHANGED DAY FOR THIS LC WEBINAR** - NOW 3.30pm 10th February - Latest updates on CLL

Leukaemia Care and the CLL Advocates Network have invited us to join them for th...
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Weight Loss

Good Morning. I have been taking 600mg of Venclexta daily since November and my...

Troublesome skin rash

Hello everyone I haven’t posted for ages just trying to deal with multiple probl...

What’s going on ? Time for new treatment?

My husband George’s WCC has jumped from 28 to 60 in 6 weeks, Haemoglobin dropped...

Cll the unexpected-surgery

Well surgery was 3.5 hrs. Dr. Said he did well and went as expected. There was a...

Severe Neutropenia 2 months after reaching UMRD?

Many of you have heard my saga with husband's CLL journey. Was able to stop trea...

Treatment this week

I’m supposed to get a call to start acalbrutinib next week I’m 28. I also have a...

My dad is newly diagnosed. ? About weight loss

My dad is 67 and was just diagnosed with CLL. We are waiting for information o...

CLL IN 40s

I'm 43 and have three young children. I was recently (11/2021) diagnosed with C...

R-Chop failed with lymphoma, What's Next?

My wife (81 but in great physical shape) was diagnosed with stage 3 follicular l...

Ibrutinib and covid vaccine

Hi, Do Ibrutinib have to be stopped before a covid vaccine?

Level of immunity

Sorry r cusher have had 2 A Z and a Pfizer and have another ? awaiting 4th which...

Sudden Lymph Node Enlargement

I am a 58 year old female and was diagnosed a year ago. I have great bloodwork ...

Treatment advice after calquence fails? Pain relief advice?

Hi I'm new in here. My mum has CLL. She was 80 on new years day. She was previou...

So what should I ask my new specialist?

Am a 50s male diagnosed with CLL less than one year ago. Recently, ALC doublin...

Obinutuzumab and a bit of worry.

Obinutuzumab and a bit of worry. I had the first two parts of Obinutuzumab last ...

CLL the unexpected.

Well my husband started Imbruvica on Oct 5 with wbc at 300,00. The week of Dec 2...

Platelets

Hi friends. Since my anticovid 2 vaccination began with Sinophar and an Astraze...

CLL Global Research Foundation Town Hall - Dr. Keating, Dr. Wierda, Dr. Ferrajoli replay of Jan 13, 2022 webinar & ASH 2021 highlights.

Video Replay of the Jan 13 presentations- lots of good information on recent res...

Priority PCR test and SNOMED coding

Thank you for all your replies and empathy. my GP surgery is lovely but they don...

USA- Last Chance to Enroll in 2022 Health Coverage Through the ACA! - Spanish Language Digital Support Community Now Available

See live webpage https://cancersupportcommunity.salsalabs.org/1-14digest?wvpId...

Anyone receive Benedryl or Prednisone along with Monocolonal Antibodies or Evusheld?

Has anyone who got monoconal antibodies for Covid treament or Evusheld for covid...

Uk What is the exact SNOMED code for CLL to get priority PCR test kit and letter?

In the continuing saga of trying to get a priority PCR test and letter does anyb...

Evusheld

Just received Evusheld injections in Westchester county NY hospital. 1 injectio...

4th Moderna (Booster) Shot is Kicking My @$$

Yesterday 1/13 I got the Moderna Booster exactly 5 months after receiving third ...

4th dose - to take or not take?

I've had three rounds of the Pfizer COVID vaccine and my GP has kindly offered m...

Pneumonia

Diagnosed with cll 2013, had my first round of pneumonia October 2021, took anti...

The Priority PCR SAGA: A Never Ending Story

I have been ringing/mailing 119, my GP, my local CCG, NHS contact centre and my ...
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