Post transplanted for 15 years. - Children's Liver ...

Children's Liver Disease Foundation

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Post transplanted for 15 years.

Passion123456 profile image
7 Replies

My daughter was diagnosed with Biliary Atresia a failed kasai. She had a liver transplant in (2004) and she has been well since the transplant. However, since last year 2018 my daughter blood test results have been coming back abnormal. My daughter has had a CT, MRI and a ultrasound scan. The images have highlighted biliary dilation and the hepatic artery is present but small calibre changes been seen. I wanted to share this information with rest of the community furthermore, we were wondering if there any other young adults in the same boat as our daughter.

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Passion123456
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Lois-Cldf profile image
Lois-CldfPartner

Hi Passion123456 are you in the UK? CLDF have lots of information on their website: childliverdisease.org and if you live in the UK we have a young person support worker too. - Lois x

Passion123456 profile image
Passion123456 in reply toLois-Cldf

Thank you and my daughter could do with counselling or some therapy on understanding the condition.

Lois-Cldf profile image
Lois-CldfPartner in reply toPassion123456

Are you in the UK?

Passion123456 profile image
Passion123456 in reply toLois-Cldf

We live in the UK and under the Birmingham Children’s Hospital.

Lois-Cldf profile image
Lois-CldfPartner in reply toPassion123456

If you haven't already you can sign up to CLDF here: childliverdisease.org/cldf-...

Do you know we have a xmas party in December too? You can find out more here: childliverdisease.org/events/

If you have any non medical questions you can contact me on cfofficer@childliverdisease.org

Passion123456 profile image
Passion123456 in reply toLois-Cldf

Hi I have followed the above link however, I am unable to find how to register for the Christmas party.

Lois-Cldf profile image
Lois-CldfPartner in reply toPassion123456

childliverdisease.org/event...

This is the link to the booking form, then go to family day and tick the xmas party box, and complete the form x

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