Posts - British Liver Trust | HealthUnlocked

British Liver Trust

36,790 members • 18,081 posts

All posts for September 2019

Cirrhosis as a result of Alpha-1 antitrypsin deficiency (AATD) - does anyone have any experience of this?

Hi Everyone, I was recently diagnosed with "early stage cirrhosis secondary to Non-alcoholic fatty liver disease" and today I had an endoscopy which showed...

Hi Everyone, I was recently diagnosed with "early stage cirrhosis secondary to N...

IanM1957

•5 years ago

14 Replies

Husband psuedo cyst

My husband had a pancreatic psuedo cyst removed Weds just gone it was 50cm about 20 inches his stomach has reduced in size still not himself will take a...

My husband had a pancreatic psuedo cyst removed Weds just gone it was 50cm about...

Sophiecat1

•5 years ago

3 Replies

PBC and varices treatments

Hi there, in July i was diagnosed with PBC liver disease at stage 3. I now have varies that need treating but I am not sure if taking beta blockers is safe or...

Hi there, in July i was diagnosed with PBC liver disease at stage 3. I now have...

Littlelilly

•5 years ago

11 Replies

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Fibrosis stage 2 and hepb chronic

Hi , my viral load is 159000000, and fibrosis stage2 with 8.1kps , 33yrs old weight 135lbs, never have drink alcohol and never have smoke in my life. Is my...

Hi , my viral load is 159000000, and fibrosis stage2 with 8.1kps , 33yrs old wei...

Lalaloo2211

•5 years ago

4 Replies

AB positive

Hi everyone anyone willing to share? My husband is AB positive anyone else have that rare blood type and did you get your transplant?

Hi everyone anyone willing to share? My husband is AB positive anyone else have ...

Wowz

•5 years ago

15 Replies

Greenham

Greenham I have been diagnosed with none alcohol fatty liver apart from losing weight which I am doing has anyone got any suggestions

Greenham I have been diagnosed with none alcohol fatty liver apart from losing w...

Greenham

•5 years ago

10 Replies

PBC Waiting time...

just wondering on average how long you waited. I have PBC and have been on the list 10 months with one emergency dash to Kings earlier this month. Luckily I am...

just wondering on average how long you waited. I have PBC and have been on the l...

Bbsmom

•5 years ago

30 Replies

I’m still here

The operation took over four hours on Tuesday. Lucky me. I caught pneumonia and Cellulitis and lots of fluid on my belly. So far I’ve not seen much change in...

The operation took over four hours on Tuesday. Lucky me. I caught pneumonia and ...

Brett11

•5 years ago

34 Replies

How long did recovery take

Hi guys I know we’re all different but wondered how long it had taken those who have had a liver transplant to get back to work. Going in for my assessment...

Hi guys I know we’re all different but wondered how long it had taken those who ...

Lunartic

•5 years ago

69 Replies

Cirrhosis update

Well here I am again, not quite sure what I’m doing most of the time but still plodding along. Dad has stage 4 cirrhosis and as most of you know comes with a...

Well here I am again, not quite sure what I’m doing most of the time but still p...

Bubbles201271

•5 years ago

8 Replies

Liver Transplant Straw Poll

Thought I'd kick off a straw poll to see how long, after going through assesment , is the typical waiting time for a new liver... of course I understand there...

Thought I'd kick off a straw poll to see how long, after going through assesmen...

hawksey

•5 years ago

25 Replies

Fibrescan 33.4 Hemochromatosis confirmed

My CT, Ultrasound and MRI didn’t show diseased but today my fibrescan score was 33.4. I don’t understand

My CT, Ultrasound and MRI didn’t show diseased but today my fibrescan score was ...

Marcwinchester

•5 years ago

2 Replies

Heart stress test

Went for my stress test at Birmingham QE today after my two day assessment. I put everything into the treadmill test after over two years of no exercise....

Went for my stress test at Birmingham QE today after my two day assessment. I...

Red65

•5 years ago

4 Replies

Tumeric

Hi, hope everyone tucked up inside on this miserable day. Quick question. I have terrible muscle joint pain and only taking paracetamol 2 daily as I don't wNt...

Hi, hope everyone tucked up inside on this miserable day. Quick question. I have...

Annie2402

•5 years ago

10 Replies

High Scan reading help!

Hi all I got diagnosed with Hemochromatosis this year. My liver tests are ok with ALT the only one raised at 86. I have an ultrasound, then CT, then MRI and no...

Hi all I got diagnosed with Hemochromatosis this year. My liver tests are ok wit...

Marcwinchester

•5 years ago

2 Replies

Have any of you paid privately in UK

Has anyone here paid privately for consultant meetings or tests or second opinions in the UK for liver cancer?

Has anyone here paid privately for consultant meetings or tests or second opinio...

eekk

•5 years ago

4 Replies

Naughty Boys and Girls-Rebels

Have you or your friend/family member at a late stage of cancer just been a total rebel and went travelling? How far a plane ride did you go? What were your...

Have you or your friend/family member at a late stage of cancer just been a tota...

eekk

•5 years ago

2 Replies

PALLIATIVE CARE

Feeling very naked and exposed, Peeps has spent most of September in the Liver Unit at London Bridge Hospital but has finally been sent home to die. There is...

Feeling very naked and exposed, Peeps has spent most of September in the Liver U...

Peeps7

•5 years ago

18 Replies

Getting off Lasix aka Furosemide

I am trying to wein myself off all my tablets constantly, over what period were you able to come off Furosemide and how did you do it? I am starting to think...

I am trying to wein myself off all my tablets constantly, over what period were...

Hidden

•5 years ago

61 Replies

Liver not suitable

Hello again Unfortunately liver not suitable, but hospital has advised we stay tonight incase we get another call. Just want to thank you all for your kind...

Hello again Unfortunately liver not suitable, but hospital has advised we stay t...

Dannythedog

•5 years ago

14 Replies

Newbie to this community.

Hi, I am on other communities for other problems but just had a blood test come back and would like a little advice before a chat with my doctor tmoro.Thanks...

Hi, I am on other communities for other problems but just had a blood test come...

49goingon99

•5 years ago

1 Reply

Slight bad news

Hi just over 5 months since liver transplant and had call from consultant after clinic visit on Tuesday. I need a liver scan so I presume when bloods taken not...

Hi just over 5 months since liver transplant and had call from consultant after ...

Steak

•5 years ago

26 Replies

Question of possible reversal or continued healing

Hi I was diagnosed 2017 with cirrhosis portal hypertension with a spontaneous splenorenal shunt large gastric varices and HE. I have never been...

Hi I was diagnosed 2017 with cirrhosis portal hypertension with a spontaneous sp...

Ughhhhhhh

•5 years ago

2 Replies

Call this morning!!!!

Hi all, got the call this morning and on our way to kings, we are in shock!!!! Hope everyone doing well ❤️ Geraldine

Hi all, got the call this morning and on our way to kings, we are in shock!!!! H...

Dannythedog

•5 years ago

18 Replies

Back to work

Hi everyone I’d just like to say how I’ve managed my second week on a fazed return to work after six months after my TP. Ideally wish I was at home but hey ho...

Hi everyone I’d just like to say how I’ve managed my second week on a fazed retu...

Popel

•5 years ago

14 Replies

First pre-assessment test

First pre-assessment test done, a Heart Echocardiogram went well - apparently I have one 👍🏽👍🏽

First pre-assessment test done, a Heart Echocardiogram went well - apparently I ...

Snorkers65

•5 years ago

13 Replies

MRI Results

Me again! We have just received a letter from the GP to say he has been informed that the scan showed some changes in the brain that they believe are alcohol...

Me again! We have just received a letter from the GP to say he has been informed...

Bs1524

•5 years ago

20 Replies

Does meditation helps?

I had a MBSR mindfulness retreat 30 days program. Since then I have almost relieved from most of my symptomes i regained my appetite i have more energy than...

I had a MBSR mindfulness retreat 30 days program. Since then I have almost relie...

kuda123

•5 years ago

9 Replies

No treatment no transplant nothing

My family member got diagnosed nearly 3 years ago, after a quick couple of rounds of tace which the doctors decided to discontinue he was sent home and nobody...

My family member got diagnosed nearly 3 years ago, after a quick couple of round...

eekk

•5 years ago

14 Replies

Help Please

My husband has just telephoned me at work to say he feels very odd like he has had a drink. He hasn’t so is this a build up of toxins?

My husband has just telephoned me at work to say he feels very odd like he has h...

Bs1524

•5 years ago

28 Replies

Posts - British Liver Trust | HealthUnlocked

British Liver Trust

All posts for September 2019

Cirrhosis as a result of Alpha-1 antitrypsin deficiency (AATD) - does anyone have any experience of this?

Husband psuedo cyst

PBC and varices treatments

Fibrosis stage 2 and hepb chronic

AB positive

Greenham

PBC Waiting time...

I’m still here

How long did recovery take

Cirrhosis update

Liver Transplant Straw Poll

Fibrescan 33.4 Hemochromatosis confirmed

Heart stress test

Tumeric

High Scan reading help!

Have any of you paid privately in UK

Naughty Boys and Girls-Rebels

PALLIATIVE CARE

Getting off Lasix aka Furosemide

Liver not suitable

Newbie to this community.

Slight bad news

Question of possible reversal or continued healing

Call this morning!!!!

Back to work

First pre-assessment test

MRI Results

Does meditation helps?

No treatment no transplant nothing

Help Please

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