Any Suggestions?

[eightofthem]

Hi everyone

Just wonder if anyone has similar experience. I have had a phone appiontment with my liver specialist and I feel like I am in the film Groundhog day.

When I was 13 I had extreme itching with no rash and went yellow. I was diagnosed with hepatitis A and jaundice.

1 have 4 grown up children and had Cholestasis of pregnancy with 2 of them. With the same constant itching that drove me mad.

My consultant has gone between NAFLD and AIH as a diagnosis and reason for my corrhosis for 10 years.

. Each time he rings he tells me that I am fine and dismisses a connection with my liver history.

For about six months now I have had problems with my sleep and he is dismissing it as a symptom I will not be getting yet? I am loosing trust in doctors and I know they are over worked at the moment but feel like im slipping through the cracks because NHS is over streached.

Don't get me wrong. I am so greatful we have such brilliant people and I have been in hospital during lockdown so I know how hard they are working.

Has anyone else felt the same?

[Hidden]

Hi eightofthem and welcome to this friendly forum. Hopefully others shall be able to share their experiences but if you are in the UK and want to talk, our nurse led helpline is open from Monday to Friday 10am to 3pm on 0800 652 7330.Best wishes, Trust10

[eightofthem in reply to Hidden]

Thank you for your advice Trust10. I will do that.

[Ubwa]

Have you actually been told you have cirrhosis? Sorry it wasn't clear in the original post. When I was 12 I went bright yellow and was eventually diagnosed with Gilbert's - so that in itself can be a red herring.

Be careful of trying to find reasons to justify your fears, I don't want to have to bring out my hooves saying , but there are lots of things that can impact sleep before your Liver does - and it generally is due to HE which means you are pretty much showing a lot of other symptoms too..