Cirrhosis compensated/on opiods and other pain killers

[lighthouse123]

Hi there, i suffer with a good amount of pain in right upper quadrant area. Consultants ALL tell me it cant have pain. I have compensated cirrhosis. I suffer from gall stones too, they were gonna remove but decided surgery not an option and decided to painmanagement. Despite i hving cirrhosis, they hv me on high dose opiods and other pain killers. Im worried about how and when this course of management wìll end. Ive been told, op to remove gall bladder is v risky. They hv said there is 10% risk to me dying. Ive two kids so i am not keen to proceed... what do i do....

Apparently im too healthy to be assesses for liver transplant. I hv 6 monthly ultra sounds, yearly gastroscopies and consults apts in between. Sometimes i end up in A AND E IF pain is too much and admitted for anti biotics. I cant see a way out from this but im worried about the pain management programme and will i ever get off it.

[Hidden]

Hello, I am sure our forum members will share their experiences.

I would encourage you to keep pain / food / symptom diary ( you may already do this) It can be useful for the medical team , to aid diagnosis and management plan.

There is information on cirrhosis and gallstones via the pinned post ' links to our patient guides'

Take care,

Trust9

[deanw41]

I’ve had “gallstone” pain for 14 years and ultrasounds have not shown anything. Last US picked up two small stones,I used to be in agony. My pancreas is slightly damaged, suggesting I had acute pancreatitis at some point!?(was never hospitized) . Under my right rib,through to my back and up into my right shoulder. Much better now I’m not drinking. They wouldn’t take it out anyway because of Portal Hypertension,too risky

[lighthouse123 in reply to deanw41]

Dean,Thank you for telling me this. You are the 1st person who knows what im talking about. I have a feeling that my experience is identical. Re the opiods though, all i want is to be eased off them. But the pain is bad and very strong but id like to get advice on withdrawal.

[deanw41]

Advice would be from whoever is prescribing them to you. Hope you figure it out,I know how frustrating it can be when you have pain and nobody can figure it out!! Best of luck..