Getting blood test results

[Mez4uk]

Can you let me know which centre you have had a transplant at and how they give you the blood test results on check ups ? Do you have them to discuss with the consultant or is there a delay between the blood test and the clinic appt with the consultant? Just wondering how it's done around the country

[Brummi]

Hi, my assessment and transplant was done at the Queen Elizabeth hospital in Birmingham. Prior to my transplant I had monthly appointment's when blood test were done, the results were given to me at the next appointment, if there was a problem I was told right away. So this ment to me they were working in the background. The Q.E have a system where I have access to my records and results at all times via a web site. My visits to the clinic now vary between 3 - 6 months apart. If you want to know more please ask. Please remember this is my routine other people may vary.

[Millie09 in reply to Brummi]

Hi brummie , that's so reassuring to know how you were treated at the QE , my first appointment is on 28 Feb with Dr Thompson or one of his team . This will be my first ever appointment with a hepetologist in over 8 years of cirrhosis . Used to be under dr Lewis at city hospital , he was a gastroenterologist but be discharged me in August 2015 . I have only ever had one endoscopy done and that was when I was in hospital for 6 weeks with ascites and had three drains done . Can't even remember my last scan ! Very bad I think , so I pushed my doctor in to referring me to the QE . My dr seems to think my liver is doing its job but you just never know what's lurking . Glad to see your doing good ! Linda 😊

[Darkmind86 in reply to Millie09]

Sorry her team Fiona Thompson and she is so lovely. Good luck.

[Millie09 in reply to Darkmind86]

Thanks Darkmind86 oh so he is a she then . Trust me to assume it was a man 🙈. Thanks for the heads up !

[Darkmind86 in reply to Millie09]

She is lovely we've seen 4 different docs from her team and they are all great. I assumed she was a he too. Lol. C

[Mez4uk in reply to Brummi]

Thanks, we are also at the QE but much more recently. Just wondered what went on around the country too. Having to get used to the idea of discussing bloods that are a week old I guess - also have access online but that can be a catch 22 if things are not going as expected.

[Brummi in reply to Mez4uk]

Hi I know the QE quite well as I go there on average twice a month. Almost got my own car parking space...lol

[Millie09 in reply to Brummi]

lol !! I'll give you the nod on my next appointment then brummie lol

[Jahida in reply to Brummi]

I'm another QE frequenter. In fact lately the visits have been once a month.

They usually call me if there is anything significant in the blood results and you can also use myhealth website. You need to ask your consultant for a leaflet code etc.

QE is lovely. I am under Dr Hirschfield although I prefer seeing his colleagues than him. Dr Tripathi is nice.

Hope all goes well!

[Hidden]

I had my transplant in Leeds and bloods were done on each visit. I would usually get results shortly afterwards through email contact with post transplant team.

Mike

[jojokarak in reply to Hidden]

Did you ask them to send you the results or was it a suggestion from them, they seem to not tell me anything of relevance and it's beginning to annoy me

[Hidden in reply to jojokarak]

It is a while ago now but I recall being asked if I had email and would be happy communicating via that. It was an extremely useful way of communicating, to be quite honest: quick, informal and direct.

[jojokarak in reply to Hidden]

Thanks for that Mike am going to ask them at my appointment next week x

[Hepcwtf]

I have been treated by Dr Simon Williams at Nuffield Health Center Ipswich and then via same consultant at Ipswich hospital. Blood results tend to take about a week no matter if it's private or NHS. This is for Hep C treatment though not transplant.

[Dulux]

Kings take bloods when I'm in clinic and generally write a letter withy my status and some key results.

I get bloods done for transplant team monthly by my GP, I get these back in 24 hours and I go in and collect a copy, if there is anything odd I email my nurse contact at Kings and she gets it to my heptologist and transplant team as I don't trust my GP faxing it to Kings. If I'm bored I sometimes play top trumps of blood tests between different tests I've had!!

[Mez4uk]

Thanks for all the replies guys - it's early days for us and I find it very frustrating to discuss bloods a week later, particularly if things are not going to plan or as expected.