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Breast Cancer

galgo profile image
8 Replies

Anybody here on Exemestane

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galgo
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8 Replies
SpookiNT profile image
SpookiNT

Yes.

nikonBlue profile image
nikonBlue

hi, I'm on Exemestane. Been on it for almost a year now.

Blue x

everlife profile image
everlife

I am on exemestane and have no side affects hope this helps.

galgo profile image
galgo in reply to everlife

Thanks you xx

SpookiNT profile image
SpookiNT in reply to galgo

Sorry.. My single answer yes probably not very helpful! Were possibly side effects your worry? If so..i think mine are probably minimal as well. Hope all goes well for you

galgo profile image
galgo in reply to SpookiNT

Thank you will try whenI finish Radiotherapy x

Aquapuss profile image
Aquapuss

I was on it for about 18 months after coming off letrozole due to side effects ( bone pain especially in feet was terrible and had low mood on it) Found exemastane much better, no side effects, felt great but .. then I started to get insomnia about a year later which started with delayed sleep, but then literally became unable to sleep and would go whole nights without it. Needless to say I felt terrible, and after initially thinking it was stress I spoke to breast clinic nurse, and she immediately recommended coming off it. It is a known side effect in some women. I also have an underactive thyroid so that might have complicated things too. Am now on anastrozole which is similar to letrozole in how it works but I seem to tolerate it better. Get some pain like before but nowhere near as bad, so trying to put up with it until next year review when I should be able to come off it. Good luck, hopefully exemastane will suit you

galgo profile image
galgo

Hi The pain in my legs is the worse I also have been on Anastrozole and at first was good but then a few weeks later I started with pains again so now I don't know if I should stop taking it altogether Im having Herceptin injections had 15 rounds of chemo and 15 rounds of radiotherapy surely its enough to stop it coming back.My neighbour took hormone tablets for 10 yrs it came back 11 yrs later in her other bust

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