Posts - Bone Health and Osteoporosis UK | HealthUnlocked

Bone Health and Osteoporosis UK

5,580 members • 2,452 posts

All posts for March 2019

Should I stop prolia?

Have been on prolia injections for 5 years since breast cancer and double mastectomy followed by 3 months of chemo. Next Prolia Due 7/2019. Wasn’t informed of...

Have been on prolia injections for 5 years since breast cancer and double mastec...

•5 years ago

Prolia advert

This evening quietly watching a consumer program on Canadian Broadcasting Corporation (CBC). There was an ad showing a little girl and her stages of life...

This evening quietly watching a consumer program on Canadian Broadcasting Corpo...

•5 years ago

Got 2014 letter, any advice

Popped into GP surgery today and asked for a copy of my Dexa Scan results which no one told me about until a couple of weeks ago, I'm still waiting an appt for...

Popped into GP surgery today and asked for a copy of my Dexa Scan results which ...

•5 years ago

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Osteoporosis/Osteopoenia The Marketing of Fear

From the article: The marketing of fear: Osteoporosis Australia, a medical foundation, which has received funding from pharmaceutical companies, issued a...

From the article: The marketing of fear: Osteoporosis Australia, a medical foun...

•5 years ago

Need a 'gluten free' Vit D supplement.

Can anyone recommend a proven to work 'gluten free' liquid Vit D supplement. Can be spray or drops. Thanks.

Can anyone recommend a proven to work 'gluten free' liquid Vit D supplement. Ca...

•5 years ago

It Started With A Prolia Shot

Hi, I am ImmunePoison. I picked that name because it feels like my immune system has been permanently altered by a single shot of the drug, Prolia. I am a...

Hi, I am ImmunePoison. I picked that name because it feels like my immune syste...

•5 years ago

Itchy scalp

Some time ago I read on HU about a man who had an itchy scalp brought on by medication. I now am troubled by the same problem and wonder if the original...

Some time ago I read on HU about a man who had an itchy scalp brought on by med...

•5 years ago

Electronic acid

Hi I am asking for a friend who is supposed to take electronic acid but has had gastric surgery and cannot drink a half pint of water in one go to take the...

Hi I am asking for a friend who is supposed to take electronic acid but has had ...

•5 years ago

Stomping for bone health

Whilst looking for a weight bearing exercise that I can do. Came across stamping your feet. Has anyone tried this?

Whilst looking for a weight bearing exercise that I can do. Came across stampin...

•5 years ago

K2 Oral Spray

Hi. I know there’s a discussion on vitamin K2 and it’s benefits for osteoporosis , I’m thinking of trying it. has anyone tried the K2 oral spray, and if so,...

Hi. I know there’s a discussion on vitamin K2 and it’s benefits for osteoporosi...

•5 years ago

Is back pain normal in osteoporosis?

I went to the doctors in 2012 with chronic backpain. I knew I had lost height and the doctor sent me for a DEXA scan. I was diagnosed with osteopenia and it...

I went to the doctors in 2012 with chronic backpain. I knew I had lost height a...

•5 years ago

blood test for osteoporosis

The Blood Test for Osteoporosis is usually normal in osteoporosis but may be elevated with other bone diseases. Vitamin D - deficiencies can lead to decreased...

The Blood Test for Osteoporosis is usually normal in osteoporosis but may be ele...

•5 years ago

stopping Prolia treatment

After 3 Prolia injections I have decided to stop. I have had side effects such as very frequent UTIs, chest infection, and severe gum infection after dental...

After 3 Prolia injections I have decided to stop. I have had side effects such a...

•5 years ago

Vit D supplement made no difference!

My Vit D was tested via Medichecks October 2018 and was 54.7 nmol/l - ref: 50 - 200. I used Delux spray at 3000iu per day, with K, calcium and magnesium for 3...

My Vit D was tested via Medichecks October 2018 and was 54.7 nmol/l - ref: 50 -...

•5 years ago

Dental health

Anyone elses dental health suffering. I just seem to always need treatment and not sure if its related. Only on Adcal and annual infusions. Severe receeding...

Anyone elses dental health suffering. I just seem to always need treatment and ...

•5 years ago

5 years ago........

This is my first time posting on this forum although I've followed it for a while, this is why, October 2013 breast cancer surgery followed by radiotherapy...

This is my first time posting on this forum although I've followed it for a whil...

•5 years ago

Alendronic acid

Hi all, Is there anyone who has had good Dexa scan results when taking Alendronic acid. If so, how long did you take it for, and how long have you been off it.

Hi all, Is there anyone who has had good Dexa scan results when taking Alendroni...

•5 years ago

Link : A yoga sequence for osteoporosis: most everyone can do this sequence

https://yogainternational.com/article/view/yoga-sequence-for-osteoporosis An excellent, gentle sequence with pictures. You don’t have to know or do yoga to...

https://yogainternational.com/article/view/yoga-sequence-for-osteoporosis An exc...

•5 years ago

Empty small plastic medicine ampoules - recycling?

Does anyone use medicine in little plastic ampoules (for instance the liquid is put into a nebuliser). I have collected my empty plastic ampoules (I have two...

Does anyone use medicine in little plastic ampoules (for instance the liquid is ...

•5 years ago

Is it possible to have alkaline phosphatase within the normal range but still have elevated bone loss?

I have what very, very clearly seems to be rapid bone loss due to a bad reaction to a substancebut my AP level is normal (if anything, on the low side). My...

I have what very, very clearly seems to be rapid bone loss due to a bad reaction...

•5 years ago

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Exercise - Gym Programme

Hello Since diagnosis, I have been going to a council gym. Initially, for a year, I was on a Live Active programme. The contact was not OP trained, but did his...

Hello Since diagnosis, I have been going to a council gym. Initially, for a year...

•5 years ago

Where is the Evidence for Pharmaceutical "Prevention" of Fracture? Interesting article: why most doctors are dead wrong about osteoporosis

http://www.greenmedinfo.com/blog/why-most-doctors-are-dead-wrong-about-osteoporosis The authors conclude: "Given all this, should 'osteoporosis' be added to a...

http://www.greenmedinfo.com/blog/why-most-doctors-are-dead-wrong-about-osteopor...

•5 years ago

Prolia....serious side effects after first injection....are there any class action suits? Usa

Dx osteoporosis t score - 1.4. Breast cancer stage III CHEMO and radiation..receiving femara last 8 years. First dose prolia about 1 week ago...severe...

Dx osteoporosis t score - 1.4. Breast cancer stage III CHEMO and radiation..rec...

•5 years ago

Reposting link to class action regarding Prolia ( thanks to sweetsusie )

This excellent link requires a repost. Link above for those harmed by Prolia interested in checking out this class action suit...

This excellent link requires a repost. Link above for those harmed by Prolia int...

•5 years ago

Has anyone got Osteonecrosis of the knee after Zolendronic Acid Infusion and long term Prednisolone for PMR?

Hi, am having unbearable pain in my knee,so bad it is making me scream. Ended up in A and E last week,where they did nothing but send me away with useless...

Hi, am having unbearable pain in my knee,so bad it is making me scream. Ended up...

•5 years ago

Link to a wonderful blog about one woman’s journey with Osteoporosis drugs. Excellent reading.

https://healthunlocked.com/api/redirect?url=http%3A%2F%2Fwww.JoansBackboneDisaster.com

https://healthunlocked.com/api/redirect?url=http%3A%2F%2Fwww.JoansBackboneDisast...

•5 years ago

Weighted vests

Can anyone please advise regards weighted vests and recommend a particular one. Many thanks.

Can anyone please advise regards weighted vests and recommend a particular one. ...

•5 years ago

Osteoporosis

Hi I’ve been diagnosed with osteoporosis of the spine. Zoledronic yearly infusion has been recommended for me. Has anyone had this treatment?. I’ve heard the...

Hi I’ve been diagnosed with osteoporosis of the spine. Zoledronic yearly infusio...

•5 years ago

Interesting article regarding Big Pharma and the selling of sickness. Worth a read as you consider your options.

“ Perhaps as sinister as any aspect of the drug business is how Big Pharma has completely taken over the FDA. A recent Harvard study slammed the FDA making the...

“ Perhaps as sinister as any aspect of the drug business is how Big Pharma has c...

•5 years ago

Looking for some articles/research that refutes Big Pharma’s take on osteoporosis?

I posted these links in a thread somewhere, but am now reposting as people have requested some of these. I don’t know how to find the links and research that I...

I posted these links in a thread somewhere, but am now reposting as people have ...

•5 years ago

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Community Guidelines for Bone Health and Osteoporosis UK

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