Thrombocytopenia.

[Thatchcottage]

I have a T score if - 2.6 and f.neck -2. In July I picked up and tryed to carry a old hostess trolley and I fractured my L1. A wedge fracture.I feel I am being bullied into having an alendronic Acid infusion which I know will make my platelets drop even more than they are at the moment which I have looked up and feel it is dangerous for me. When I refused the person's concerned did not understand my fear.

I am taking vitamin D and calcium, can I take vitamin K2 as well I want to try and naturally increase my bone density. I have been given no physio at all and I am doing walks with my trolley although it takes me ages of up to 5 miles every other day. Any core exercises would be welcome please.

Also does anyone else have ITP and osteoporosis.

[CloudyD]

Hi. I don't have ITP with osteoporosis but just wanted to highlight that taking K2 may not be right for you. As I understand it K2 has a role in blood thinning. So that's something you should try to have a talk with your GP or specialist about.

For exercise, I found several youtube channels of properly qualified physios or other doctors with exercises specifically for osteoporosis. Just put a search into youtube and find the ones that resonate with you best, checking that the people are properly qualified. Also the Royal Osteoporosis Society has a whole page of exercises too: theros.org.uk

[Thatchcottage in reply to CloudyD]

Thankyou I will ask my doctor about the vitamin k.

[Bemoresquirrel]

I’m sorry to hear about your recent fracture. I don’t have osteoporosis orITP, but can recommend Margaret Martin is a physio online who specialises in osteoporosis. She has exercise books, including one on improving core strength, videos & courses & an excellent YouTube channel with lots of information, including safe exercises. Her weekly newsletter also contains useful tips too.

I only have osteopenia, but was also under pressure to take alendronic acid & even offered to sign a disclaimer, at which point my GP backed down.

[Thatchcottage in reply to Bemoresquirrel]

Thanks.I noticed my T was 3.1 in 2018 it's now 2.6 so something is working maybe it's the vit d and calcium + my walking . I will definitely look up the exercises and start gently.

[Helsbels2428]

Hi! I can honestly say don’t be bullied into alendronic acid! There are other alternatives… I am on HRT now after a month of the A A … it was frightenening and after research I wondered why we are being put on this… I felt awful… but some people ok with it… just dr Google it! I take Vitamin K2 but my doctor son looked at me on last visit with the??? Look!! I think Vit K is quite enough!! I went privately to see an endocrinologist and it was worth every penny…. Just stand your ground and get armed with info! We who have had compression fractures are worth it!!

[Thatchcottage in reply to Helsbels2428]

Thankyou, I did try the tablets once but felt as if I was in a kind of daze and had stomach ache , mouth ulcers and a clicky jaw so I stopped it. I have put my foot down and said as big no to the infusion.I will ask about HRT, but don't know if they will give it to a 75 year old but I will ask. I am building myself up myself so that I can ride my bike again , I am so looking forward to that goal.

They are now making an appointment for me to see a rheumatologist.