BAV with mild aortic stenosis

[Serena15]

Hiya everyone, I had an echo a few months back which showed I have a BAV with mild stenosis. Does anyone know if this will always progress into sever stenosis? I know everyone is different and I could have mild stenosis for years however has anyone been Diagnosed with mild stenosis and then it’s quickly progressed? I also have IST. Thanks!

[Samgeorge]

Hi serena15. I am no expert but I have severe aortic stenosis and my understanding from doing some digging on the internet is that unfortunately yours will progress. Just depends on the speed of it. I’m nearly 52 but have a bicuspid aortic valve which is worse for stenosis. I expect they will keep a close eye on you with regular scans. After the second scan they should be able to gauge the speed of progression. Fingers crossed it will be slow and by the time it needs treatment there will be some new super duper drug that can fix it without the need for surgery. 🤞

Take care 😉

[Alisbabas]

Hi Serena,

I am in the same boat and I have bav with a mildly dilated aorta which I am also wondering how quick does it progress...

I think everyone is different and it can take years or go the other way, like Samgeorge said until you have that second scan then they can get a better look.

Stay safe

Ali

[Mikedabike]

Hi Serena, let me stress I am no medical expert. I had mild aortic stenosis identified from an echo. Without any idea of your age it is difficult to quantify. From what I can gather aortic stenosis will get worse, however this can vary from weeks or months to literally years. The idea being that you will be monitored at regular intervals. I wish to highlight a problem I found with whole monitoring system. I have always kept exceptionally fit, and was born with a bicuspid valve. I had no idea about this until my health took a downward spiral in my early sixties. I was diagnosed with ‘mild’ aortic stenosis and a small aneurysm, and told I would need regular 12 month monitoring. Then my breathlessness and activity deteriorated very substantially. My cardiologist was not concerned and said all was well. Instinctively I knew this was not the case. The problem was that by outward appearances I appeared to be an extremely fit and healthy 60+ years male. Eventually my wife and I attended a local A & E department as we were that worried about my condition. Even there they took one look at me, and before any tests they decided I was basically fit and well. Luckily as a precaution they arranged for a CT scan the next day. The next day I had my scan, after the scan they placed me in a wheelchair and would not let me leave the hospital. Two weeks later, OHS, new mechanical aortic valve and a hemiarch graft in my aortic root. From the moment I was detained in hospital the treatment and service was exceptional and second to none. The point I am trying to make here is that the echo only shows a partial picture. A CT scan is expensive, however when used it provides so much more information. All I would say is, if you are worried in future push for a CT scan. To hopefully allay any fears, until my diagnosis I had no idea how common the OHS is, and how successful it can be. Through very helpful sites like this one I have discovered so much information. I had no idea that many people even in their teens and twenties are now having successful valve replacements. The good news is that they have identified the stenosis. You are now on their radar and should be subject to regular monitoring. Hope this helps and sorry to rabbit on a bit too much.