Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,051 members • 4,597 posts

All posts for May 2024

Balance

I am struggling with balance anybody know any exercises and balance ball any good with help

I am struggling with balance anybody know any exercises and balance ball any goo...

Tazwaz

•3 days ago

9 Replies

What is it like to have SCA3?

I have finally found the correct description for what it is like for me with SCA3. Can you imagine walking in a stream that has river pebbles so that your...

I have finally found the correct description for what it is like for me with SCA...

Bikebug

•9 days ago

5 Replies

Apart from the Cerebellum…what else effects balance

Not having enough visual information, such as when you are in darkness, open spaces or travelling in a lift, can affect balance. Your eyes get their...

Not having enough visual information, such as when you are in darkness, open spa...

wobblybee

•10 days ago

5 Replies

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An online Study….recruiting re Speech Disorders

A new study on speech disorders in ataxias is recruiting participants Do you have a diagnosis of ataxia, and experience speech disorders? If so, you could...

A new study on speech disorders in ataxias is recruiting participants Do yo...

wobblybee

•12 days ago

2 Replies

Ataxia Pain

My partner was diagnosed with cerebella ataxia about 4 years ago. He has the usual symptoms of balance loss, problems walking, etc. What I don't read much...

My partner was diagnosed with cerebella ataxia about 4 years ago. He has the us...

l111ulu

•13 days ago

7 Replies

All My Life.

Ever since I was a small boy, my hands have shaken, in fact my brother tells me I was born shaking (I don’t know if he was kidding) Any way as I said, shaken...

Ever since I was a small boy, my hands have shaken, in fact my brother tells me ...

Veteran250

•14 days ago

6 Replies

weight vest

I am a physician in the US. I am looking for interventions that can help my patients. Has anyone had any experience - good or bad - with weighted garments...

I am a physician in the US. I am looking for interventions that can help my pat...

dlhfeldman

•14 days ago

12 Replies

Cionic Neural Sleeve

Has anyone ever heard of this Cionic Neural Sleeve? I heard about it on a podcast and then did some digging. I received an email from my physical therapist...

Has anyone ever heard of this Cionic Neural Sleeve? I heard about it on a podcas...

Rezzy3

•14 days ago

3 Replies

Scared of falling

Falling is really scary. I'm constantly bruised from losing my balance but every so often I have a pretty big fall. Like today, I was trying to stand up from...

Falling is really scary. I'm constantly bruised from losing my balance but every...

cherry311014

•15 days ago

14 Replies

Supplements

Hi, I have always taken high dose supplements, does it help the ataxia? I don't know!Looked at Patrick Holfords supplements and "Brain Food" sounded...

Hi, I have always taken high dose supplements, does it help the ataxia? I don't ...

penelope2

•16 days ago

9 Replies

help!

Got another question to ask all my ataxia friend’s are normally quick to answer so here goes. I have SCA2 my mum and her 2 sisters are ataxia free so I think...

Got another question to ask all my ataxia friend’s are normally quick to answer ...

weegiz12345

•21 days ago

13 Replies

SCA type 48

Hi everyone, My mother has just been diagnosed with Spinocerebellar Ataxia 48. We have been told it’s very rare but this could be due to only recently finding...

Hi everyone, My mother has just been diagnosed with Spinocerebellar Ataxia 48. ...

RN12120

•22 days ago

5 Replies

My attempts at managing SCA3

I have a COMPEX SP8.0 (it is not cheap, and it is the best EMS on the market) and it can be adjusted based on its measurement of the muscles. I am not taking...

I have a COMPEX SP8.0 (it is not cheap, and it is the best EMS on the market) an...

Bikebug

•26 days ago

7 Replies

Best aid for progressive mobility decline. E- Traveller Electric Rollator.

I have SCA3 and have looked into best devices to assist getting around safely. I can recommend the E-Traveller Electric Rollator. It is available from...

I have SCA3 and have looked into best devices to assist getting around safely. ...

Bikebug

•27 days ago

8 Replies

Russia

You have to be hard to have ataxia so I think we should all get together to beat Russia we will become the SAS ie the Special Ataxia Service Russia will not...

You have to be hard to have ataxia so I think we should all get together to beat...

paul456

•27 days ago

7 Replies

Genetic diagnosis

Hi all, sorry I haven't posted anything for ages but sometimes life is like that. I have finally got some sort of diagnosis. I had more genetic testing a...

Hi all, sorry I haven't posted anything for ages but sometimes life is like that...

ww-wibblywobbly

•28 days ago

3 Replies

Many thanks!

Thank you so much to all the people who took the trouble to answer my query about how much exercise to do. There was so much good advice and sharing of...

Thank you so much to all the people who took the trouble to answer my query abou...

Libra7

•28 days ago

1 Reply

I can people with cerebellar ataxia teach themselves to walk again?

Hi folk, I have not written anything on here for a while, but I have two questions. The first one is, can people teach themselves to walk again to cerebellar...

Hi folk, I have not written anything on here for a while, but I have two questio...

AnneMenzies

•28 days ago

6 Replies

Can you do too much exercise?

I wonder if any one else has the same experience as me. We all know how important exercise is for neurological conditions so I followed the conditions of a...

I wonder if any one else has the same experience as me. We all know how importa...

Libra7

•29 days ago

13 Replies

Lost site

I lost this site gain. Why?

klazien

•1 month ago

Be the first to reply

pharmacological coma

Is it possible to resort to pharmacological coma when a person suffering from ataxia has to remain tied to the bed and is fed artificially?

Is it possible to resort to pharmacological coma when a person suffering from at...

michelagvolpe

•1 month ago

3 Replies

CEREBAL ATAXIA

Wounded on patrol in the Middle East and a Motar Shell hit my section and I received gunshot wounds to head, eyes, brain with Shrapnel entering my Cerebellum...

Wounded on patrol in the Middle East and a Motar Shell hit my section and I rece...

Guards

•1 month ago

5 Replies

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for May 2024

Balance

What is it like to have SCA3?

Apart from the Cerebellum…what else effects balance

An online Study….recruiting re Speech Disorders

Ataxia Pain

All My Life.

weight vest

Cionic Neural Sleeve

Scared of falling

Supplements

help!

SCA type 48

My attempts at managing SCA3

Best aid for progressive mobility decline. E- Traveller Electric Rollator.

Russia

Genetic diagnosis

Many thanks!

I can people with cerebellar ataxia teach themselves to walk again?

Can you do too much exercise?

Lost site

pharmacological coma

CEREBAL ATAXIA

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive