Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,088 members•4,660 posts

All posts for December 2016

Tom Clouse - Walking with Taxia

Tom is planning to come to England- hurrah! I received this .... Tom has been invited, and will be working with a few individuals in Ellesmere, England for the...

Tom is planning to come to England- hurrah! I received this .... Tom has been in...

•8 years ago

Vitamin B12 and Ataxia

Hi, I'm new to the site although I've lurked for a while, but I thought I'd pop in and mention something quite interesting that I discovered recently. Trying...

Hi, I'm new to the site although I've lurked for a while, but I thought I'd pop ...

•8 years ago

Referred by GP but still waiting

My wife (68) was diagnosed with Cerebella Ataxia on 26th September 2016 and referred to a neurologist …… we still await an appointment. Like many writing on...

My wife (68) was diagnosed with Cerebella Ataxia on 26th September 2016 and refe...

•8 years ago

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Ataxia

For the past few weeks I cannot cross roads without holding on to someone I feel as if I'm going to loose my balance the same happens on slopes and curbs

For the past few weeks I cannot cross roads without holding on to someone I feel...

•8 years ago

daily difficulties living with ataxia

Hi. I had ataxia for several years now, probably my disease started developing early during my childhood. I never performed well in any sports, I always had...

Hi. I had ataxia for several years now, probably my disease started developing e...

•8 years ago

Exercising Yay or Nay

Just been diagnosed with Ataxia, not sure which type yet, got to see the neurologist to hopefully find out. I'm very conscious of the fact that my muscles will...

Just been diagnosed with Ataxia, not sure which type yet, got to see the neurolo...

•8 years ago

Living with Ataxia

I was diagnosed eventually about five years' ago. Originally thought I had ME. No pain just co-ordination, eyesight and mobility problems. Gets more and...

I was diagnosed eventually about five years' ago. Originally thought I had ME. ...

•8 years ago

I'm new here

Hello, my name is Molleke2 and I live in Holland. I have SCA-type 3. I joint this community to help exchange information about SCA/ ataxia. Together we know...

Hello, my name is Molleke2 and I live in Holland. I have SCA-type 3. I joint th...

•8 years ago

Ataxia, stomach problems and lycopene

Although i tested negative for gluten ataxia (I have "idiopathic" SCA), I am considering starting a gluten-free diet. Partly due to comments I have read on...

Although i tested negative for gluten ataxia (I have "idiopathic" SCA), I am con...

•8 years ago

Judith

Hi. I'm Judith from Ely, Cambs. Just been diagnosed with suspected Ataxia. My mother had all the symptoms really severely. It affected her quality of life...

Hi. I'm Judith from Ely, Cambs. Just been diagnosed with suspected Ataxia. My mo...

•8 years ago

Magnet therapy in ataxia?

Has any one had any success with magnet therapy for ataxia? My father in law has given my husband (he has cerebellar ataxia) strong magnets to wear around his...

Has any one had any success with magnet therapy for ataxia? My father in law has...

•8 years ago

That tremor controlling bracelet for Parkinson's Disease

I don't normally watch TV programmes like the 'Life fix' series on BBC last week but I caught bits of it I wanted to see on iplayer...

I don't normally watch TV programmes like the 'Life fix' series on BBC last week...

•8 years ago

Whats the point of diagnosis?

Can someone please explain the benefits of diagnosis of attaxia and it's specific type or cause? I am confused as husband seems to have many symptoms going...

Can someone please explain the benefits of diagnosis of attaxia and it's specifi...

•8 years ago

Ataxia and optic disc pit and macula hole and partial detached retina opticians said not necessary to see neuro opthalmologist

Hi opticians said andys eye problems didn't need referral to opthalmologist as opthalmologist discharged him a year ago that was before we knew about Attaxia I...

Hi opticians said andys eye problems didn't need referral to opthalmologist as o...

•8 years ago

epilepsy and wheelchairs

i triedto get a powered wheelchair as i can hardly walk at all local council said i cant have one due to mild epilepsy of which i know is coming about1 hour...

i triedto get a powered wheelchair as i can hardly walk at all local council sai...

•8 years ago

Getting worse

Hi all - this is rather an embarrassing problem. I was diagnosed with FA 12 years ago and lately I h developed bowel incontinence. It is really affecting my...

Hi all - this is rather an embarrassing problem. I was diagnosed with FA 12 year...

•8 years ago

Another day at the office

just had second round of physio, the therapist has said , "its all about getting strength back in the legs", I knew that, its not rocket science, and me a...

just had second round of physio, the therapist has said , "its all about getting...

•8 years ago

Sickness

does anyone have trouble with sickness ? My diet has changed to very bland food have never liked spicy food so that has never bothered me but recently been...

does anyone have trouble with sickness ? My diet has changed to very bland food ...

•8 years ago

cannabis and ataxia

hi ive been a lot lately about the use of cannabis in neurological pain what do people think is it worth trying surely must be preferable to opoid painkillers

hi ive been a lot lately about the use of cannabis in neurological pain what do ...

•8 years ago

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