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Ataxia UK

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Ataxia Pain

My partner was diagnosed with cerebella ataxia about 4 years ago. He has the usual symptoms of balance loss, problems walking, etc. What I don't read much...

My partner was diagnosed with cerebella ataxia about 4 years ago. He has the us...

l111ulu

•12 hours ago

1 Reply

All My Life.

Ever since I was a small boy, my hands have shaken, in fact my brother tells me I was born shaking (I don’t know if he was kidding) Any way as I said, shaken...

Ever since I was a small boy, my hands have shaken, in fact my brother tells me ...

Veteran250

•1 day ago

6 Replies

weight vest

I am a physician in the US. I am looking for interventions that can help my patients. Has anyone had any experience - good or bad - with weighted garments...

I am a physician in the US. I am looking for interventions that can help my pat...

dlhfeldman

•1 day ago

7 Replies

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Cionic Neural Sleeve

Has anyone ever heard of this Cionic Neural Sleeve? I heard about it on a podcast and then did some digging. I received an email from my physical therapist...

Has anyone ever heard of this Cionic Neural Sleeve? I heard about it on a podcas...

Rezzy3

•2 days ago

2 Replies

Scared of falling

Falling is really scary. I'm constantly bruised from losing my balance but every so often I have a pretty big fall. Like today, I was trying to stand up from...

Falling is really scary. I'm constantly bruised from losing my balance but every...

cherry311014

•2 days ago

12 Replies

Supplements

Hi, I have always taken high dose supplements, does it help the ataxia? I don't know!Looked at Patrick Holfords supplements and "Brain Food" sounded...

Hi, I have always taken high dose supplements, does it help the ataxia? I don't ...

penelope2

•4 days ago

6 Replies

help!

Got another question to ask all my ataxia friend’s are normally quick to answer so here goes. I have SCA2 my mum and her 2 sisters are ataxia free so I think...

Got another question to ask all my ataxia friend’s are normally quick to answer ...

weegiz12345

•9 days ago

10 Replies

SCA type 48

Hi everyone, My mother has just been diagnosed with Spinocerebellar Ataxia 48. We have been told it’s very rare but this could be due to only recently finding...

Hi everyone, My mother has just been diagnosed with Spinocerebellar Ataxia 48. ...

RN12120

•10 days ago

5 Replies

My attempts at managing SCA3

I have a COMPEX SP8.0 (it is not cheap, and it is the best EMS on the market) and it can be adjusted based on its measurement of the muscles. I am not taking...

I have a COMPEX SP8.0 (it is not cheap, and it is the best EMS on the market) an...

Bikebug

•14 days ago

7 Replies

Best aid for progressive mobility decline. E- Traveller Electric Rollator.

I have SCA3 and have looked into best devices to assist getting around safely. I can recommend the E-Traveller Electric Rollator. It is available from...

I have SCA3 and have looked into best devices to assist getting around safely. ...

Bikebug

•14 days ago

8 Replies

Russia

You have to be hard to have ataxia so I think we should all get together to beat Russia we will become the SAS ie the Special Ataxia Service Russia will not...

You have to be hard to have ataxia so I think we should all get together to beat...

paul456

•15 days ago

7 Replies

Genetic diagnosis

Hi all, sorry I haven't posted anything for ages but sometimes life is like that. I have finally got some sort of diagnosis. I had more genetic testing a...

Hi all, sorry I haven't posted anything for ages but sometimes life is like that...

ww-wibblywobbly

•16 days ago

3 Replies

Many thanks!

Thank you so much to all the people who took the trouble to answer my query about how much exercise to do. There was so much good advice and sharing of...

Thank you so much to all the people who took the trouble to answer my query abou...

Libra7

•16 days ago

1 Reply

I can people with cerebellar ataxia teach themselves to walk again?

Hi folk, I have not written anything on here for a while, but I have two questions. The first one is, can people teach themselves to walk again to cerebellar...

Hi folk, I have not written anything on here for a while, but I have two questio...

AnneMenzies

•16 days ago

6 Replies

Can you do too much exercise?

I wonder if any one else has the same experience as me. We all know how important exercise is for neurological conditions so I followed the conditions of a...

I wonder if any one else has the same experience as me. We all know how importa...

Libra7

•17 days ago

13 Replies

Lost site

I lost this site gain. Why?

klazien

•20 days ago

Be the first to reply

pharmacological coma

Is it possible to resort to pharmacological coma when a person suffering from ataxia has to remain tied to the bed and is fed artificially?

Is it possible to resort to pharmacological coma when a person suffering from at...

michelagvolpe

•20 days ago

3 Replies

CEREBAL ATAXIA

Wounded on patrol in the Middle East and a Motar Shell hit my section and I received gunshot wounds to head, eyes, brain with Shrapnel entering my Cerebellum...

Wounded on patrol in the Middle East and a Motar Shell hit my section and I rece...

Guards

•20 days ago

5 Replies

Don't use an EMS machine if you get burning hot feet at night.

Tried using an EMS machine for 4/5 days not sure if it helped peripheral neuropathy but it really made my burning hot feet worse at night I was up every...

Tried using an EMS machine for 4/5 days not sure if it helped peripheral neuropa...

carol31271

•21 days ago

6 Replies

My good friend

My best friend 👍🏻

paul456

•22 days ago

1 Reply

The good, the bad, and the not so good looking....

I confess I got this idea from an earlier post. Copied the concept as a compliment to the original (unknown) author while using words to describe my...

I confess I got this idea from an earlier post. Copied the concept as a complim...

Telegraphist

•23 days ago

2 Replies

missing life before ataxia

Hi, I really miss the old me before I had ataxia. Ataxia took so much away from me and no one understands how hard it is not being able to do so many things...

Hi, I really miss the old me before I had ataxia. Ataxia took so much away from...

cherry311014

•24 days ago

19 Replies

Trembling

Hello I have SCA6 and it has been effecting my life for about 5 years, I am 67 years old, Just recently my hands have started to shake. If I just hold...

Hello I have SCA6 and it has been effecting my life for about 5 years, I am...

Kauri1

•27 days ago

10 Replies

vestibular dysfunction

Hello, I was diagnosed 7 years ago with SCA unknown cause, following blood tests. Does anyone else suffer with vestibular dysfunction? I’m seeing a vestibular...

Hello, I was diagnosed 7 years ago with SCA unknown cause, following blood tests...

mimosaholland

•30 days ago

12 Replies

Mollii Suit…..giving muscle stimulation

What is a Molli Suit A comfortable jacket and trousers with built-in electro-stimulation for adults and children living with motor function and other...

What is a Molli Suit A comfortable jacket and trousers with built-in electro-s...

wobblybee

•1 month ago

9 Replies

Researchers at King’s College London are recruiting participants for a remote study on online peer support.

Researchers from King’s College London, software developers, and a group of people living with long-term conditions have co-designed a new intervention to help...

Researchers from King’s College London, software developers, and a group of peop...

Irmmy

•1 month ago

Be the first to reply

How things are now!

My G.P has prescribed me Tizanidine for my spasms at their worst they kept me awake throughout the night, now great no spasms in the night. She has also...

My G.P has prescribed me Tizanidine for my spasms at their worst they kept me aw...

carol31271

•1 month ago

4 Replies

🙂For those of us who have fond memories of Bill Treacher.

Bill Treacher, played the part of Arthur Fowler, for many years in the TV series Eastenders. https://www.ataxia.org.uk/in-memory-bill-treacher/?fbclid=

Bill Treacher, played the part of Arthur Fowler, for many years in the TV series...

wobblybee

•1 month ago

1 Reply

Peripheral neuropathy?

Hi everyone I have gluten ataxia and am curious if peripheral neuropathy is limited to just autoimmune ataxias or do other types like hereditary and acquired...

Hi everyone I have gluten ataxia and am curious if peripheral neuropathy is limi...

penelope2

•1 month ago

12 Replies

A new study on physical activity in hereditary ataxias is recruiting for participants

If you or someone you know is over 18 and has a confirmed diagnosis of a hereditary form of ataxia, you could take part in a new study on strength and balance...

If you or someone you know is over 18 and has a confirmed diagnosis of a heredit...

Irmmy

•2 months ago

1 Reply

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

Ataxia Pain

All My Life.

weight vest

Cionic Neural Sleeve

Scared of falling

Supplements

help!

SCA type 48

My attempts at managing SCA3

Best aid for progressive mobility decline. E- Traveller Electric Rollator.

Russia

Genetic diagnosis

Many thanks!

I can people with cerebellar ataxia teach themselves to walk again?

Can you do too much exercise?

Lost site

pharmacological coma

CEREBAL ATAXIA

Don't use an EMS machine if you get burning hot feet at night.

My good friend

The good, the bad, and the not so good looking....

missing life before ataxia

Trembling

vestibular dysfunction

Mollii Suit…..giving muscle stimulation

Researchers at King’s College London are recruiting participants for a remote study on online peer support.

How things are now!

🙂For those of us who have fond memories of Bill Treacher.

Peripheral neuropathy?

A new study on physical activity in hereditary ataxias is recruiting for participants

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive