Lung function test: Hi I was diagnosed... - Lung Conditions C...

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Lung function test

burtley29 profile image
8 Replies

Hi I was diagnosed with emphysema two years ago on a ct scan, I have had one lung function test since which was 76% fev,I recently saw the copd nurse at my doctors and she said they was not doing them any more but I spoke to a lady in a shop and she said she had one last week at the same surgery,I was not sure how fast the fev figure goes down so I may have to pay privately the test was14 months ago ,I feel this is unfair but I want to get a test soon.Thanks

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burtley29
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8 Replies
Mellywelly profile image
Mellywelly

Hi, I thought you had a yearly review, which includes a lung function test. Unless I'm thinking of the wrong thing. I know my sisters doctors don't do them but sent her to another clinic which did. I would look into that with your doctors, doesn't sound right to me chook. 😉

leo60 profile image
leo60

Hello! I have never had a lung function test! But I am booked in to have one soon in a (not so) nearby hospital as my consultant wants to look into LVR for me. He has always said that measurements of my COPD are irrelevant, it is how I feel and am affected that counts! xx

John1922 profile image
John1922

I have not had a lung function test for years but i think it's because my doctors are rubbish

Maricopa profile image
Maricopa in reply to John1922

In the States they are usually done annually. In order to qualify for early retirement/disability the fev1 must be around 30%! So that’s the reason some get them. They are quite expensive here. My fev1 at diagnosis 17 yrs ago was 58%. Last PFT the fev1 was at 19%.

John1922 profile image
John1922 in reply to Maricopa

Everything is free here, just getting stuff sorted is the problem

Turnipgirl profile image
Turnipgirl in reply to John1922

They never were the most efficient of places were they even when times were good!

LadyLakota profile image
LadyLakota

Hi, I too have emphysema, also my doctors practice was stopped from doing the lung function test, ask to be referred to a hospital near to you that has a breathing clinic, thats what I did and now have a lung function test done every year on a proper machine, not a mobile one. I'm 16 years with emphysema. Good luck

Ergendl profile image
Ergendl

My GP practice respiratory nurse no longer does lung function tests. I bought a device on Amazon that does that for me, so that I can monitor my FEV1 when I'm concerned.

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