Change of inhaler

[garshe]

Is anyone with COPD using Trimbow 87/5/9 micrograms.Thanks

Sheila .

[sassy59]

No Pete isn’t Sheila but might get to try it one day. How are things with you? Sending love and hugs to you.

Carole xxx🩷🤗❤️

[garshe in reply to sassy59]

Not too good Carole. My Respiratory nurse has changed my Spiriva and Sirdupla inhalers to just one Trimbow. Only got it today haven't tried it yet. Hoping to get some feedback on forum . Lots of love to you and Pete xx8

[sassy59 in reply to garshe]

So sorry to hear that Sheila. Hoping the Trimbow will help. Thinking of you dear friend. Take care xxx💕💕💕💕

[garshe in reply to sassy59]

Thank you Carole.lots of love xx Sheila 😘😍💕💕

[sassy59 in reply to garshe]

🥰🩷💕❤️xxxx

[Blackbird8]

Hi Sheila I use Trimbow and its been absolutely fine for me .. I changed from Spiriva around 2 years ago it didn't seem to be working properly for me ...Hope this helps you some if your not happy on it in a few weeks get changed back to Spiriva 🥰

[garshe in reply to Blackbird8]

Thank you. Hope it helps me as I have been suffering for months now. Hope you are well, sending love xx.Sheila ❤️

[Blackbird8 in reply to garshe]

I'm very well thanks...I hope the Trimbow works for you and you feel a bit more settled very soon sending love and my best wishes 🩷🧡

[Alberta56]

I hope the Trimbow will work for you. 🤞🤞🤞 xxx

[garshe in reply to Alberta56]

So do I as desperate now. Been suffering for months and unable to walk around even though on 24/7 . oxygen thank you xx.Sheila 🙏💕

[Patk1 in reply to garshe]

Some positive feedback for u.hope it helps.was concerned reading Yr on 02 24/7 as U said hospital had said you weren't to have it xxx

[garshe in reply to Patk1]

I agree and it upsets me as when I came out of hospital last September was oxygen free. Then November had chest infection and was put on oxygen 16/24. Now struggling on 24/7. I wish I knew how this has happened. Been speaking to respiratory team but oxygen nurse only giving advice over the phone. I don't want to go into hospital as they have closed 2 wards as Covid and other viruses there. My Respiratory nurse calling tomorrow I need this sorted as I am housebound. Xx.Sheila 🙏💕

[Patk1 in reply to garshe]

I hope u improve on new inhaler, Sheila.are respiratory/02 dept checking your blood gases regularly - taken from left wrist ot left ear? Yes flu, covid, bad cold+ coughs etc about.roll on spring and milder weather xxxxx

[Alberta56]

Hugs and best wishes. xxx

[garshe in reply to Alberta56]

Thank you xx.Sheila 💕

[Difficul]

It works for me. I recommend you give it a try.

[garshe in reply to Difficul]

🤞🙏hope it works for me also thanks xx.Sheila

[djbctla]

Unable to help, but it’s great to hear from you. BERNARDINE

[garshe in reply to djbctla]

Thanks Bernardine really struggling here xx.Sheila 💕

[djbctla in reply to garshe]

I really wish you back to your usual self, out and about etc., BERNARDINE 🌺

[suef]

I've had mine for about 3yrs im fine with it. X

[garshe in reply to suef]

Thank you great to hear that ,gives me hope xx.Sheila 🙏

[Danielmystar]

Hi I use Trimbo ive been using it without any problems the one you've just been put on is the one I was on for about 5 years now im on the higher strength I fund both strengths have helped me alot .

[garshe in reply to Danielmystar]

Thank you makes me feel more Positive. Take care xx.Sheila 👍💕

[Hopeful1]

Trimbow has been great for me. Especially when used with aerochamber as shown on Trimbow website. We are all different but hope it works well for you

[garshe in reply to Hopeful1]

Great news ,put my mind at rest . Take care xx.Sheila 👍💕

[Piper21]

I’ve been taking it for a couple of years. Im very happy with it

[garshe in reply to Piper21]

Thank you that's reassuring. Lots of love xx.Sheila ❤️

[Suzie42]

I've been on it for over a year, I was told it takes about 3 weeks to give you maximum help, so give it a chance. I've never been better on it. I dont use ventolin at all know, although it's been 18 months since I last got a cold or cough 🤞Just give it a good try. Wishing you better soon x

[garshe in reply to Suzie42]

Thank you sounds positive xx.Sheila 🙏👍💕

[Bingo88]

Good morning garshe I was changed to Trimbow from Trelegy and after 3 weeks I found I was coughing more even during the day on the Trimbow so reverted back to my Trelegy. Hope it helps you. Others have said it helped them if you check on previous posts. Brian

[snow54flake]

hi I am on 179/5/9 don’t know what the numbers mean.

[soppysokes in reply to snow54flake]

it means the steroid component (the first figure) is a higher dose

[snow54flake in reply to soppysokes]

Thank you for that I know I was told I was on the highest dose.

[Mellywelly]

Hi Sheila, didn't get on with it myself but hopefully you will find it great. Still trying different ones, just seems to take ages in-between 😉

[Kismet23]

I've been on it for a couple of years. Found it really helpful, but exacerbations catch up with me this time of the year....I now have Fostair to top me up in between the 12 hour doses and am enquiring (again) about nebulising. I hope Trimbow works well for you...I wouldn't like to be without it!

[anng18]

Hi Garshe,

I was moved from Spiolta to Trimbow. a few years ago. I really wanted Spiolta and Fostair, but the nurse was not able to prescribe it. I've lost weight since being on Trimbow, which isn't great as I was so slim, in the first place. They are obsessed that this is the inhaler I should be using, but I find that by the afternoon, the effects wear off. It's so so.

Hope it works for you. Make sure you rinse your mouth well after taking it, as it can cause thrush. I haven't had this side effect, as yet, but am careful on the mouth rinsing!

[50shadesofgrey in reply to anng18]

Hi anng I’ve only recently been diagnosed with emphysema and have been given spiolto but I was told yesterday to stop it as I’ve been itching terrible on my ankles and shins to the point where I make myself bleed. Doctor thinks it might be the inhaler, have you had any problems? In fairness I’m not sure if it was actually helping or not so it’s going to be interesting to see.

[anng18 in reply to 50shadesofgrey]

I didn't have problems with itching, but I think Spiolta did raise my heart beat. It's very difficult finding the right inhaler - at least your Doctors seem to be listening to you, as the sort of rash you are describing does sound like an allergic reaction.

[kikuyu]

Hi Garshe

Ive been on trimbow couple of years now. Find it good but only lasts 4/5 hours these days.

Have to use ventolin 3 times or so during the day. I hope you get your mobility back Garshe,

Thinking of you.

[HerLadyship]

Hi Sheila...I've been on Trimbow since beginning of December. To be honest I don't think it's doing me any good. I have an appointment on Feb 8th ...so hoping to get advice/changed inhaler then. I was also concerned that the breathlessness might be heart related so I will bring up this at the appointment. Hope things improve for you soon

[leo60]

Hi Sheila 😊 Sorry to find you still no better. I have been on Trimbow (from Spiolto Respimat) for some time now and have been really well on it. Give it a good try and I hope it helps. Good luck, I expect the shops are missing you 😘😘 xx😘

[Timberman]

I do. No side effects. Seems to do the job.

[Donald_1931]

Trimbow 87/5/9 together with occasional use of Salamol keeps me going Sheila and I hope it does the same for you. 😊xx

I'm surprised to read that you are on oxygen after the trouble it caused you in the past. I'd double check that requirement if I was you.

[garshe in reply to Donald_1931]

I know Don nurse been here today checked my gasses. Having blood tests on Thursday, coming to my home as housebound. Hate being on oxygen 24/7 as I was oxygen free coming out of hospital last September. Really fed up and lost quite a bit of weight. Muscle wastage from not being mobile. I need my life back as no appetite and I always loved my food..hope you are well xx.Sheila 🙏

[tomc]

Hi Shiela.

I have Trimbow, salbutamol easybreath and Salbutamol / saline nebuliser Along with a drawer full of tablets..

Now I don`t care what I'm taking cause I feel happy and as high as a kite. weeeeeeeee.

[garshe in reply to tomc]

I'll have some of what you're having lol.😁😄💕👍

[Loopylorre]

Hi Sheila, was only thinking about you yesterday & wondering how you were doing, sorry to hear you’ve not been well, hopefully things will improve for you with the trimbow, no help with information I’m afraid as not on it myself but you seem to have been given quite a few opinions from others here that are on it, wishing you well & hope you have improvement soon in your health, keep us updated please sending get well wishes to you, 😊💐🌹🌺 xx

[armstrong2]

hi l am on trimbow inhaler ...lhave been on it about 2 yrs l am finding it works perfectly well for me and no side affects ...hope it works well for you

[blueferret]

Hope you`re feeling a bit better. I started on Trimbow about 4 moths ago, no major problems. I don`t like the aerospacer that came with it for the trimbow or the ventolin. I stick to the older space for the ventolin when I need to. I have had a bit of itching which I hadn`t connected to the Trimbow. I`ve also lost my appetitie quite badly but that may be due to the Azithromycin 3 days per week I`ve been on for 6 month for pseudomonas on top of my copd. Prob not helpful but I hope it works for you, good luck.

[pegbl]

Hi Sheila I was in hospital with pneumonia in October the respiratory nurses talked me into changing to Trimbow ….i have severe COPD ….i was very reluctant but gave it a try …. No change at first but after about a month I began to feel I could breathe a lot easier I don’t need my ventolin and my oxygen stayed steady at 90/92 I’m really pleased with it…..I’m hoping it lasts 👍 good luck I hope it works as well for you. Pegxxx

[pegbl]

meant to say I was on duo resp and Braltus and came home on oxygen for 4 weeks

[Germantara]

Yes I do it's a dry powder sometimes I feel there's nothing comming out but it must be cause my breathing ok I can't use a spacer with mine but it works OK being on it nearly 3 years suffer dry mouth and thrush but it is OK inhaler

[Patk1]

Sheila,just a thought - would u be better having a few days in hospital again,see if they can help? X

[garshe in reply to Patk1]

I try to avoid hospital as they have closed 2 wards with Covid and other viruses..I almost dialled 999 on Friday but the week end is not good as junior doctors and also queues. I have problems at home which mean I have to be here but so helpless as can't move around . Although on oxygen my sats are very low so I am breathless.Thanks xx.Sheila

[Patk1 in reply to garshe]

Yes that's the prob at mo with covid,flu & other viruses.but,if yr not managing at home.i suppose it's toss up.I hope they're doing blood gases(from wrist or left ear) regularly.

Last time u were in hospital,they said U weren't to have 02 & u picked up rapidly off it x

[garshe in reply to Patk1]

I have my Respiratory team calling and I speak to them daily. They check from my ear. I have another infection and having problem with my GP as won't give me antibiotics , he's a Locum and really stupid. Louise my Respiratory nurse has now contacted surgery for antibiotics, hopefully will get them tomorrow. I don't want to go in hospital as I have everything here. Oxygen , nebuliser etc . Take care xx.Sheila ❤️

[Patk1 in reply to garshe]

That's bad.hope u get thm tomorrow cxxx