A update on treatment/ and more.

[Ern007]

I went for number two of a short three BCG course for my BC.

The liquid BCG is inserted into bladder from a huge syringe into a catheter.

A student nurse was present and my Urology Nurse a=said to het I had Muscle Invasive Bladder Cancer. news to me, I said and don't know why - I will now have to google Muscle Invasive Bladder Cancer rather than - CIS Bladder Cancer.

CIS mean just cancer in site, not spread but aggressive and could do, I was aware of that.

The Nurse reaction to what I said was NO - It's just spread into the first part of the lining.

It seems that this far the BCG has not worked - So after next BCG, in about 4 weeks I will have a Diagnostic Cystoscopy and take biopsies - That will be a tell all.

That depends what treatment I will then get.

As a by the way I have still not got the results of my Chest CT - Although my consultant has it.

I said would be short, so sorry for the long post.

[Coolcat6103]

Hi Ern, awww bless you xx thanks for the update and we don't mind one bit how long it takes. I'm sorry it hasn't worked for you, hopefully it'll get sorted soon hope your feeling better now after the CT on your chest. It's awful that you don't know the results! Sending you my love and you're in my prayers x

[Ern007 in reply to Coolcat6103]

Thank you

[Colliesam]

Hope all goes well and you get some answers soon 🙏

[Ern007 in reply to Colliesam]

Thank's so do I, seems ever changing.

[Bingo88]

Good morning Ern007. Just hope the treatment is doing some good for you and hope everything went well with the chest c.t. Take care and both enjoy your day. Brian

[Ern007 in reply to Bingo88]

Thank you - I will know more in 6 weeks or so.

[sassy59]

Hoping things work out well for you Ern. I’m thinking of you as always as you’re going through so much.

My treatment begins on the 31st of this month hopefully 🤞🏼

Take care xxx❤️

[Alberta56 in reply to sassy59]

I wish they would hurry up. I know they must be busy, but..... Love xxxxx Sorry to be impatient, Chris

[sassy59 in reply to Alberta56]

Thank you dear Chris. I’m impatient too. Xxx

[Ern007 in reply to sassy59]

Thank's Carole - I am hoping to get radiotherapy as this BCG (up to now has not done much) Nurse agreed A Radical Cysectomy may be to much for me, I am hoping i get the alternative. Radical radiotherapy being there has been a little spread may now be an option along with Chemo if need be.

My thoughts are with you over the 31st of this month Carole. take things easy and relax xx

[sassy59 in reply to Ern007]

You too dear friend. We will both get through this. Take care xxx🩷

[Colliesam in reply to sassy59]

Hope all goes well on the 31st, prayers sending 🙏

[sassy59 in reply to Colliesam]

Thank you so much xxx💕

[CDPO16]

That sounds like an upsetting visit Ern. I hope that you get better news soon xx

[Ern007 in reply to CDPO16]

Was not a good visit hearing second hand it had spread - and the op probably was not the best for me - I may now get Radical radiotherapy and Chemo what i wanted in the first place - Thank's Carole. xx

[CDPO16 in reply to Ern007]

In my thoughts Ern and hoping for better news for you. Love Carole xx

[Ern007 in reply to CDPO16]

Thank you xx

[Alberta56]

I hope they can find some treatment that does work- and soon. As for the chest CT, a brief phone call would be enough for starters, with a more detailed explanation to follow. In Mid Essex it apparently takes 8 to 10 weeks to get the results of a scan, so your hospital is doing better than that. Best wishes- it's always good to ear from you, whether the posts are short or long.

[Ern007 in reply to Alberta56]

Thank you - They have it now, nurse sys she does not know.

[Izb1]

Keeping my fingers crossed for you Ern at this difficult time and lets hope the next lot of biopsies are good for you. Do you have an appointment with your consultant for the results of CT scan, if not give him a push. Thinking of you x

[Ern007 in reply to Izb1]

I never knew at first who ordered the scan, treatment nurse said it was consultant - i think this treatment is not doing great, I think they are holding the CT results until after the cysoscopy biopsy results, then I expect a completely different plan - Thank you x

[djbctla]

God bless you Ern you are having a very hard time of it at present. My thoughts and prayers are with you. BERNARDINE 🌹🌹🌹🌹

[Ern007 in reply to djbctla]

Thank you BERNARDINE

[Nula2]

Not a long text at all Ern and we wouldn't mind if it was. Such a huge worry for you and your family. We're all sending positive thoughts your way. Take care and please keep us posted ❤️ xxxx

[Ern007 in reply to Nula2]

Thank you Nula2 x

[Mellywelly]

Post as long as you need to chook. Everyone is here for you. They don't seem to rush with your scan do they. Please keep posting and I will keep my fingers crossed that your scans ok. ❤ 😉

[Ern007 in reply to Mellywelly]

Thank you

[Oshgosh]

I am pleased that you’re still battling on.x

[Ern007 in reply to Oshgosh]

I think you have to, never give in x

[Oshgosh in reply to Ern007]

Xx

[watergazer]

Sorry things didn’t go as you would have liked Fingers crossed for future procedures x

[Ern007 in reply to watergazer]

Thank you, I never had that much faith in BCG, they were right to try it, It will I think be very diffferent after my follow up.

[Germantara]

I hope ya get sorted don't worry about how long you're post is because you're going through alot at the moment and some one else could have the issues you're facing and it will help them to know there not alone

[Ern007 in reply to Germantara]

Thank you - This first started (at home) in Oct 2020 - I was diagnosed in July 2021 - The time has whizzed by.

[Nicholatracy]

Hoping you get the answers to your questions and the results of CT scan. Stay strong 🐞

[Ern007 in reply to Nicholatracy]

Thank you. I will always try

[Ergendl]

Hope you get your results soon. Keep on trucking. We're on the sidelines, cheering you on.

[Ern007 in reply to Ergendl]

Thank you .

[katieoxo60]

Good to hear from you with an update, sorry its not as good as you would like. Nice you are being well looked after and hopefully soon you will be getting better results. Hope your search for more details is fruitful and helps you understand what's happening to you. Write as long a post as you like it can help waylay some of the stress. Take care x

[Ern007 in reply to katieoxo60]

Thank you - My blood results are mixed, my BCG ends Tuesday and I have a GP appointment on Friday, if she has the details, I will get to know. x