HOSPITAL AGAIN FOR THE 13TH TIME +HYPERVENTILATION

[Sara_2611]

Hi guys

Well here I am again in hospital for the 13 time same old story - oxygen levels dropped to 50 Now im hyperventilating as well which has been going on for a fortnight

Im going for a scan later on today because the results of a blood test apparently said something is abnormal whixh is bizzare condidrring that when i had one done in resuss they all sai normall & " no infection & when i was transferred to assesment unit the resultsof amorning blood test said all red & white blood cells were notmal then an afternoon blood test suddenly said their was something was abormal

All the docs are telling me one thibg others different so dont know who to believe anymore

[Turnipgirl]

The communication in the health service is rubbish isn't it?

[Sara_2611 in reply to Turnipgirl]

Yes it is completely 100% with ypu

[Mellywelly]

Makes my blood boil. Demand answers. It's the only way sometimes. Especially when it comes to your health. Good luck 👍

[Turnipgirl in reply to Mellywelly]

It's extremely frustrating isn't it when you get fobbed off and can't get a straight answer to a simple question!

[Sara_2611 in reply to Mellywelly]

I might do im a bit sick n tired of being told one thing that is incontrary to whats been said

Ive had my scan today so we ll see what the formal report says

[Brikel]

recently been discharged from hospital after nearly a month in there I went in after Oxygen nurse came out and found my oxygen levels very low she called the ambulance .

I had a battery of tests including CT scan with dye . It was only after a Bronchoscopy that they found I had PCP( Pneumocystis pneumonia)

I couldn’t fault the care and communication from all the medical staff including the doctors and consultants .

It transpired that the drug I was using for my RA ( Benepali ) which I thought was a game changer as it stopped my aches and pain, had reduced my Immunity to nearly zero, so opened the doors to any and all infections . Benepali has now been stopped

I hope that the hospital you are in investigate this properly and you get the help you deserve regards

Brian

[Izb1 in reply to Brikel]

Sorry to hear this Brian, biologics are not all they are cracked up to be with drastic side effects, hope they find a safer replacement soon x

[Brikel in reply to Izb1]

Thanks

[Sara_2611 in reply to Brikel]

Thank you ive had a scan with a dye today its a strange experience i teally hope tje result ismt too bad but imprepared for thle worst Ive bern putnon the list for a tramsplsmt assesemt so it could go eiter way.

[Bingo88]

Hope you get some answers soon and start to feel better and can relax at home. Take care let us know how you get on. Brian

[Brikel in reply to Bingo88]

Thanks will do

[Alberta56]

Sorry you are being messed about so. i hope they can give you some definitive answers soon.

[Izb1]

I really hope the scan shows what the problem is and they can deal with it quickly, you dont want to be in hospital longer than you have to be in this heat x

[Sara_2611 in reply to Izb1]

I had a blood test tofay around 5.45witj mu spevialust & she told me id get the results thebsame same day but theybnevrr materislised I waited all evening because i wanted to know if ive got a clot pn my lungs. So im quite nervous anout the result ss my specialist doesnt come back while momday now. Ive reqiestef duscharge on Monday so i can teach my class on tiesday morning but of thetes somethinh wrong i csnt

[Izb1 in reply to Sara_2611]

Aaaw thats a bit rotten to make you wait over the weekend. Get something to take your mind of things and try not to think about it, easier said than done I know. Maybe a good book or hobby or even a night out x

[Sara_2611 in reply to Izb1]

I can never go out at all moe. Im eggectovely on permamt lockdown om hyperventilating noe on every move i make so gping ouy will never be sn option

[Brikel in reply to Sara_2611]

I know what it’s like having to wait over the weekend for results you always think the worst, But hang on in there and wait until you get results before making the decision to discharge yourself. You don’t want end up having to back in and all that waiting in A & E again.

[Sara_2611 in reply to Brikel]

Lets hope not but im concerned that the company who have cjosem me to volunteer wiyh them might tirn round & say im not committed & give my job to someone else - even if it is voluntary

One other thing that im not sure how to react is when someone gives you more food that you ask for. To be clear a guy who is of colour /or other nationalty (whatever the correct termination is) comes in & asks me what i want for breakfast - & thats fine - perfect correct english. I made it clear I only asked for TWO pieces & he gave me FOUR. I knew i was very clear in my request as a trained English teacher of students whose first language isnt English. He wouldnt take 2"pieces back (i hadnt handled it it was still on the plate. One of the HPs (healthcare professionals) asked me what i had for breakfast & I outlined that then told them what had happened

[Brikel in reply to Sara_2611]

I know I asked for coffee and toast. And received a couple of rounds (I only wanted one)

It was awful like trying to eat cardboard

[Sara_2611 in reply to Brikel]

I could saddle a horse with iy Thankfully my dad came round to see me with some lovely home made tea. Spag bol.i needed it Hospial food is disgusting Only things i like are the fruitv ice cream & sponge puds

[Brikel in reply to Sara_2611]

lunch was soup and a roll

Trying to guess the flavour of the soup was an entertaining part of the day

Luckily my wife brought in some enjoyable sandwiches .

yes the fruit a jelly and ice cream was the only edible thing on the menu

[Sara_2611 in reply to Izb1]

Tjanks so do i

[Ern007]

I feel for you Sara - I really do. I have lung and heart conditions but my cancer care keeps changing, changing back. It's not the hospital staff - IMO it's the MDT system. Hope you get sorted soon.

[glds100]

Hi Sara, I was taken into hospital as I was struggling to breath (I have Asthma) my Sats were low and I had a temperature. Bloods were taken in A & E when read and I was told I did not have an infection, but I was admitted because my SATs were low, The next morning by complete fluke the consultant doing the ward rounds knew me as I saw him every 3 months for another condition. He compared the result to a blood test that I had a few months earlier. Under normal conditions I have a very low white blood cell count it is considered just within normal range, but the blood test they did at the hospital showed my white blood cells were at the highest they could be to fall within normal range. The consultant pointed this out to his juniors and said it showed that I did have a chest infection and to treat me accordingly. Hope you feel better soon.

[Sara_2611 in reply to glds100]

Thanks a lot

[Poppy2525]

keep fingers crossed that everything is ok