Well this Monday will take me closer to knowing if I’m to be
accepted for transplant.
Transplant was discussed with me by my specialist in November 2021 after a scheduled lung reduction was no longer viable.
I had a few meetings at wythenshawe hospital, which is my nearest lung unit. I was given a lot of information regarding a double lung transplant, they was all very nice and thorough. I was allocated a transplant co ordinator then was informed a would be discussed at the weekly meeting.
September this year I was admitted to the “Jim Quick” ward at wythenshawe . I honestly thought I was in a private hospital. For the three days I was there the staff couldn’t do enough for me, I had a one on one nurse that you could ask anything. I had some intense tests done, I suppose the angiogram was the most invasive, this test showed I had a small amount of heart disease but was assured it shouldn’t be something to worry about. I have now received a letter to attend the hospital this Monday to meet the Surgeon who would be doing the transplant. This is where I am so frightened of being rejected.
Any advise or comments from any transplant patients would be great.
Regards Paul
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Northernsaul
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I’m not a transplant patient but have heard great things of Wythenshawe so I’m glad you’ve got them to help you. There’ll be a whole team of excellent people looking after you
HI, my transplant hospital was Wythenshaw nearly 3 and a half years ago. Wising you the best results on Monday, and if there is anything you want to ask, do so, and if I can answer I will.
Best to jot down anything you wish to ask the team as its easy to forget with every thing going on.
Hi Paul, Have faith in the decision making process and trust those specialists to make the right decision. I had my assessment February this year and was advised it’s not time yet. I agree with them as I am finding ambulatory oxygen such a relief although I’m not able to be quite as active as I once was. Remember if they say it’s not the right time now … there’s possibly an opportunity in the future. Wishing you the best of luck and a good outcome whatever it may be.
This must be so worrying for you, but Wythenshawe is a good hospital. My dad had a quadruple bypass there a few years ago and always spoke well of the place. I’ll be thinking of you tomorrow.
Absolutely no knowledge about transplants, only cancer treatments when I was translating documents. All I would say is that after so many years of successful transplants, heart, lungs, kidney, they have got this down to a fine art. If this will give you a better quality of life then go for it. Best wishes, Chris.
Oh gosh, I feel your fear. Its a big deal. I'm sort of in a similar situation in that this Monday I'm going for an angiogram which the transplant team asked be done, as part of my 'work up'. I'm pretty apprehensive about the procedure but trying not to think about it too much! I hope my assessment will not be far away. Really hope you get the news you want on Monday. Its encouraging to read comments on here from a acouple of people who are post successful transplant. Sending very best wishes
I spent 4 days in Birmingham in August for transplant assessment tests. Angiogram, right heart catheter, Stomach CT. X rays, lung function tests, 6 minutes walk. It was very well organised and much less onerous than I was expecting. Also had a consultation with a psychologist. I would read up on what would be expected pre and post transplant. All my tests were fine but my weight and bmi too low so I am currently working to achieve my target weight andstrength and then I will go back up to Birmingham to get a decision. Good luck with your assessment. Keep as healthy and strong as you can. You will need to be strong to get through and recuperate.
I'm going for an initial transplant assessment and seriously, all this stuff sounds terrifying to me. Angiogram and heart catheter etc. I am a physical coward and cry when they take the artery bloods from me. I don't suppose you will see this so far on but what does the psychological assessment look like, I have extreme anxiety.
Please believe me it is frightening for most of us going through the evaluation. Please talk to your nurses about being worried about the tests. They can explain things to you and help you through. It is perfectly natural to be concerned. My friend was terrified of needles before her transplant. Now she is not anymore. You get used to it over time. I will be four years post transplant in July. Please let me know if I can support you in any way. And remember you are NOT a coward. You will find your strength and courage to get through it. It just takes some time. Best wishes to you. Cas 🙋♀️🐕
Sending every thing good your way! I'm under Harefield but with their palliative care team's support I'm pootling along with the option of a tx in the future.
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Removed from Transplant
Refusing Lung Transplant
Aspergillus post lung transplant.
