Rare diseases

[Sandrapez]

Does any body on this site, have a very rare lung disease called pulmonary langerhans cell histiocytosis?

[madonbrew]

Hi Sandrapez, sorry I haven’t heard of this one. Someone here might have though. Hopefully someone will be able to help you out soon.

Dee 🌺

[Hidden]

There was someone I replied to either last year or the year before with LCH. Not sure if they’re still a member on the boards, and it’s always possible that they’ve left having recovered, but if you put up a post with Langerhans in the title, they might spot it and say hi? If you’re looking to speak to others with the condition, you could also try the UK histiocytosis charity:

histiouk.org/lch-in-adults/

[Hidden]

Hi Sandra. I think Hidden is talking about Fran. She had Langerhans & was a very active member for a while, but then left. Put Langerhans in the search box & someone might come up.

[Hidden in reply to Hidden]

Thank you, Hanne, I couldn’t remember her name and I’d replied to lots of people since then, so couldn’t see it in my history, either!

[Sandrapez]

Thank you all for your reply’s