What a couple of weeks…😡: Following... - Lung Conditions C...

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What a couple of weeks…😡

Mrbojangles profile image
26 Replies

Following double lung transplant assessments they have now discovered i have coronary stenosis but cannot make a final decision until a further report is prepared and discussed with the cardiologist.

These tests are so thorough as only the fittest( ironic eh!) can be put forward.

Depending on the grade of stenosis and whether it needs stents or bypass will determine when and if i progress to the active list.

Hey ho, onwards and upwards folks..🤪🤪

Stay safe and keep wearing your masks as this new bugger is worrying for us all.

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Mrbojangles
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26 Replies
Damon1864 profile image
Damon1864Volunteer

Hope everything goes well for you stay safe and warm, take care have a good day.😊 Bernadette and Jack 🐕 xxxxxx

CDPO16 profile image
CDPO16

It certainly is a very thorough assessment Mr b for a transplant. Without it your heart problems may not have been found. I hope that it can be successfully treated by your cardiologist and not have a detrimental effect on the possibility of a transplant.

The new variant is a bit worrying but the scientists are already researching it as extensively as possible at this stage. You stay safe too.

Walkwalkwalk profile image
Walkwalkwalk

You do seem to be getting a very thorough assessment of your whole health. I hope that the decided outcomes allow you to continue to be active on the transplant list. Whatever the outcome it is sounding positive. My best wishes,

Grace

sassy59 profile image
sassy59

It’s good to be thoroughly checked over Mrb and let’s hope things go well for you. As you say, onwards and upwards. Wishing you well. Xxx💜👍

Suzie42 profile image
Suzie42

I had aortic stenosis and had my valve replaced and I think that was one of the reasons I wasnt put forward for lung replacement. I hope they make the right decision for you. Take care

Mrbojangles profile image
Mrbojangles in reply to Suzie42

Bless you..🙏They tell me i have “probable significant calcification in the left descending artery”

It’s taken me 2 years to understand the lungs after the IPF diagnosis now it’s time for a crash course in cardiology..!

I reckon i could carry out the transplant myself now..🤪🤪🤪

Suzie42 profile image
Suzie42 in reply to Mrbojangles

Yes you probably could. Funny enough my stenosis was found by an eager locum gp when she was trying to find something else. I think she saved my life, bless her. Then IPF came along, I keep thinking did I get IPF when I had the open heart surgery 😊

Mrbojangles profile image
Mrbojangles in reply to Suzie42

What was the open heart surgery like?The Americans seem to favour this over stent placements but cynically i suspect money influences a lot of American surgeons.

Suzie42 profile image
Suzie42 in reply to Mrbojangles

I was terrified going into it, but I coped afterwards quite well, but had a problem breathing and stayed in for 10 days. Care in hospital was exceptional, I felt very safe. I had 3 chest infections for the 1st 6 months after surgery and I had 3 echocardiogram to check my valve was ok. I haven't had any problems with my heart since, it's been just my lungs. Also I had a bovine valve put in and they have a life span. Cardiologist said I wouldn't need another open heart to replace it they do keyhole instead.

Kristicats profile image
Kristicats in reply to Mrbojangles

Ok I’ll bring the knife and dettol! Have you got the manual?

Alberta56 profile image
Alberta56

I had to have open heart surgery, because I had a blockage in the wrong place for a stent. I was fitter then (7 years ago), but I was out of hospital 5 days after the op., and have never had any heart trouble since. I hope you don't need surgery, but if you do I hope it goes as well as mine. Fingers crossed a stent will fix your problem.🤞🤞🤞 xxx

leo60 profile image
leo60

I hope everything pans out in your favour MrB xx

peege profile image
peege

Will be keeping everything crossed for your getting on the list MrB

Kristicats profile image
Kristicats

🤞🤞

johnderby profile image
johnderby

I hope that they can sort out the stenosis and that you can go onto the transplant list. Good luck Mr B. John

Ergendl profile image
Ergendl

Just adding my well wishes to the others, that they can sort the stenosis so that you can get on the transplant list.

Kate124 profile image
Kate124

I had a stent fitted last year. Was referred for double lung transplant. Was turned down due to heart problems. Gutted. Hope all goes well for you.

watergazer profile image
watergazer

🤞you don’t need the surgery What a thorough check over you are having. Xx

Dedalus profile image
Dedalus

All best wishes going forward with both the coronary stenosis and lung transplant accessibility.

What a dreadful irony it is that you have to be so extremely poorly to get on the tx list, yet judged well enough on the survivability front.

If there is a god, which I doubt, he/she must be ‘avin a larf at this perfect example of a catch22. Good luck to you in dealing with it all 😘

Thinkhealthy profile image
Thinkhealthy

hope all goes well with the test results x

Izb1 profile image
Izb1

Good luck Mr B hope all goes well for you x

HollyBoyd profile image
HollyBoyd

Hope you can see cardiologist soon to get treatment and then onwards to continue lung transplant assessment. good luck for your journey Mr B xxx

Karenanne61 profile image
Karenanne61

That's a blow! Here's hoping it can be sorted and you're on the list asap.

Patk1 profile image
Patk1

Wishing u well

Hobbledehoy profile image
Hobbledehoy

Bless you... Best🍀wishes x

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