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Lung Removal Recovery

Bocha profile image
5 Replies

looking for advice on how to improve breathing after having lung removed? Had it taken out 2 years and still struggle. Once I start struggling I go in to a panic attack so tend not to do anything strenuous

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Bocha profile image
Bocha
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5 Replies
HungryHufflepuff profile image
HungryHufflepuff

Do you not have any follow up care? Surely this is something you should be given advice and support for. Maybe you could phone BLF for advice, they can give you answers or at least tell you where to get the answers you need. Wishing you all the best.

HungryHufflepuff profile image
HungryHufflepuff in reply to HungryHufflepuff

03000 030 555

That’s their phone number, in case you don’t have it.

judg69 profile image
judg69

Bocha, I suggest you get a Aerobika or other passive resistance breathing device from your Dr or Respiratory specialist, and use it religiously when sitting , watching tv or on your phone or iPad. This will definitely help if you faithfully use it through the day. Secondly if you get quickly short of breath, and are panting et al when walking , lifting or otherwise exerting yourself then you should ask your pulmonologist/respiratory specialist for special testing to determine if you require supplemental oxygen when up and about and sleeping . It’s also possible you could require it 24/7. If you are, in fact prescribed oxygen, don’t fight it as I can guarantee that it will improve your health , well-being and ensure your organs are getting the oxygen required to perform efficiently. All Best Wishes, judg69

Toby14 profile image
Toby14

Hi Bocha. I had my right lung removed 27 years ago and like you I was struggling . I was so bad I collapsed out walking and was taken to hospital a d they found out I had asthma in my remaining lung a d started me on inhalers. Preventive and rescue. Well I never looked back. I started breathing better and finally was able to walk my dog a fair distance. Good luck.

Caspiana profile image
Caspiana

Hello Bocha, 😊

By the time I had my lung transplant two years ago, both my lungs were wrecked. I had a single lung transplant which means I have in essence one working lung. I am often fatigued , one reason being I have Rhuematoid arthritis, but I think having just one functioning lung we must remember we have half the capacity of a person with two healthy lungs. All my transplant friends have had double lung transplants and they often ask why I am tired because they don't realise the big difference between having just one lung as opposed to two. One lung gets me from A to B, I'm lucky I don't require oxygen anymore and I don't plan to climb a mountain so I just take it easy when I can't manage and go at a pace that suits my capabilities. It's just the reality of life I suppose.

Best wishes to you,

Cas xx 🍀

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